I am at a loss and looking for some suggestions. 4 years ago my life changed when at 26 I was diagnosed with late onset type 1 diabetes. Lucky for me I had not experienced any major side effects to date, with the exception of the occasional sore feet and legs. I am very well controlled, but have noticed my pain tolerance has gone way down. Then a year later I tore my achillies tendon and broke my ankle. Days after coming out of the cast my foot started to swell, change color, hurt alot, and burn. After countless tests I was diagnosed by an orthopedic doctor, then confirmed by a pain management doctor, with CRPS. They did a series of nerve blocks, which never worked well, and put me on hydrocodone 10x325 4x a day and various doses of lyrica to try and alleviate the pain. After a few years, the hydro stopped being as affective and we were looking to make the switch to fentanyl patches. Then I lost my job and found a new one in wisconsin. I moved from Chicago to wisconsin and got into a primary doctor right away. He kept me on the hydro and then added ms contin 15mg 2x a day. This actually seemed to do beter, but still left me uncomfortable. About that time I started to feel stiff in every joint, so we ran blood work and found I also had developed rheumatoid arthritis. This doctor refered me to a pain clinic, and the past 2 months have been he'll. The doctor immediately took away my pain meds and said she wanted to try other routes. She tried a ketamine based cream, which hurt to put on and broke me out in a rash. Now she is pumping things like nortryptaline and other antidepressent because they will help me sleep and help the pain. All they are doing is making me feel foggy every day and the pain is almost unberable. AM I out of my mind to ask for fentanyl patches or something long acting plus break through for pain? Any suggestions on what might work better? I am so upset as I can hardly sleep and not only is my foot in excruciating pain, but the rest of my body aches and hurts as well. I'm thinking of firing this pain doctor and going to someone else. Any suggestions would be appreciated on what is worth a try.
I don't think you're out of your mind to want pain meds for pain. You're working so you can't have your mind messed up by all these other meds. If your dr can't understand that, you need a new dr. Anti depressants can help pain, but they are not pain medications and don't work like them. I am bothered by drs who just want to use them, don't they know about these meds? Go back to the primary and tell him the relationship with this pain dr isn't working and that they want to give you all these other things, that mess up your head. Don't complain they don't give you pain meds, that's like asking for drugs. I just went to a new pain dr because I moved and was really surprised at his response. I would have been happy to stay on tramadol because it didn't' mess my head up, but he said no way was it helping after all this time and he put me on vicodin.
I didn't want narcotics specifically but he ordered them, that was really weird with the way things are going in the country. So you never know when you see a pain dr what you'll find. I will also have injections into trigger points this week, so hopefully I can avoid the hydrocodone. lol
If this Dr isnt listening to you and managing your pain then find a new one. Different ones have different approaches. Like KM said, go back to your primary and tell him/her that you are not happy with this one and try someone new. Tell them what has worked in the past and what hasnt and go from there. Your current PM doc obviously is one that doesnt believe in using opioids (or is scared of the DEA or doesnt want the fuss of the extra paperwork involved in having someone on opioids OR all of the above!) Your best bet is to find a new Dr who will work with you.
My spouse did research and a low-carbohydrate diet has worked wonders for me. I was started on 35 units of lancets insulin and now down to 5 units injected once a day. I was well-over 200 lbs, I'm a 6 foot man, now down to 150 lbs with a resulting great Body Mass Index (BMI). By the way, my last "A1c", recently from blood work results, was an excellent "4.9". So the low-carb diet works. No grains of any kind especially no wheat products. I also gave-up cow's milk and utilize unsweetened almond milk now. My great blood work results are proof to me that this is a great diet not only for diabetics but everyone in general, in my opinion.
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