... years and still get clots in my legs and they will move to my lungs. All this while on coumdin anyone know anything about this disorder?
Factor V Leiden is the most common inherited form of a blood clotting disorder (thrombophilia).
These links may be of interest
If you have clots moving to your lungs I am surprised that the doctors have not recommended that you have a filter installed so that you can reduce or stop the risk of the clots getting to your lungs. I would talk to your docs about having one installed. You might also want to talk to them about switching to Arixtra or Lovenox if the Coumadin is not slowing down the formation of the clots.
I have been on comadin for seven years for control of factror 5 leyden. It was discovered when i had a anurisium rupture in the brain. The key to prevent more clots is to maintain the correct level in of coumadin in the blood by regular testing of PT(INR) levels. What you eat has a big impact on being able to keep a consistant level. Other medications also impact this. Vitamine K rich foods will reduce the effect of the drug and the level in your blood, impacting the comadin level in the blood. Discuss this with your doctor. Green veggies have a lot of vitramin K and shoud be avoided.
- Coumadin Information for Consumers
- Coumadin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Coumadin (detailed)
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