My husband and I seem to have the symptoms of AIP. The doctor thinks so too. We found both of us are related very far back, to families with Porphyria. Problem we live in a rural area of Virginia. Most doctors know very little about this. No testing place around here does either. We are both on Deplin, we follow treatment guidelines for AIP. Diet and all. It is working. But the doctor can not put it on our chart since we have no proof, and some meds can be very bad for us if we do have AIP.
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