Our daughter is 10, has norcolepsy and cataplexy. Is put on Concerta 18mg a day. A lot less cataplexy, but she still complains of nightmares and bad night sleep, also does a lot of day time sleepiness on any chance she gets. Dr. wants to raise the dosage to 36mg. We are new to drug, need some input on 36mg for a 10 year old. Thanks.
There is a controversial medication which I would suggest. The reason it's controversial is because it's abused on the streets. It contains GHB. It was approved by the FDA on July of 2002 and is used for Cataplexy attacks in patients with narcolepsy. It also received approval in November of 2005 to tread excessive daytime sleepiness in narcolepsy patients. The medication is shipped directly to your house and if you aren't there to receive it you're out of luck and they don't give it to you. It's called Xyrem. When used as prescribe it's a schedule 3 drug, if used illegally it's a schedule 1 drug (Illegal to use for any reason other than what it's prescribe for.) This is a great drug but doctors don't often prescribe it. It's liquid formulation. The other drug I would suggest is called Adderall. It has 4 different stimulants in it so it works for more patients. If he's unwilling to up the Concerta to 36mg which is a moderate dose for a 10 year old I would bring up the latter medications I mentioned. I hope this helps and I hope your 10 year old gets the help she deserves. Good luck!
At 18mg, she's on the lowest dose of extended release tablets. Her doctor is moving her to 36 mg which is the second highest dosage of the extended release. I'd give the new dose a couple of weeks and see how she does. If it doesn't work, you can always notify the doctor and see if he/she will try something else.
- Concerta Information for Consumers
- Concerta Information for Healthcare Professionals (includes dosage details)
- Side Effects of Concerta (detailed)
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I take xyrem for my narcolepsy and cataplexy. it helps me sleep and it controls my cataplexy. but it
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