Is anyone with this condition able to undertake any type of work? I have not worked since 2007. I tried to do a degree part time but had to withdraw from the programme after 2 months. I tried to do voluntary work twice, I only lasted a couple of hours. Now the government want me to enter into a work programme for disabled people that assist you back in the labour market. I received the ‘assisted’ itinerary today. There is no way I will be able to get through this let alone work! I just wondered if anyone else was able to hold down a job with this diagnosis.
I'm assuming you're talking about the program with SSDI? I got that phone call and a letter on their program too. In my case, I ignored it, as it said it was voluntary to participate. Are you sure the government is requiring you to do this? I understood that it is to help you to work part-time to supplement your SSDI. For me --- not a chance! I'm lucky to walk through my house without falling, let alone go to work everyday! I don't have the two conditions you have, but I have others that have rendered me totally, permanently disabled. If I were you, I'd get that info clarified.
Best of luck!
Well, I can't,
when I do a lot around the house,
I feel proud of myself,
Before... I got Lyrica,
I couldn't do anything, it was agonizing...
I wish I could work and get some pocket money, at least!
But Decided to take one day at a time, and not feel guilty...
I figure, we can only do our Best!
I have had Fibromyalgia CFS since 1990. I was a Flight Attendant from 1970 until I had to take early retirement in 2012. It was the worst job in the world for this condition due to the long hours of standing on your feet and staying up all night working red eye flights. Not to mention the nose high attitude of the plane so you are walking uphill pushing heavy liquor carts. Or hitting turbulence and getting thrown into a seat back. I am single so had to work. You have to will yourself to get through it. You learn to put the pain on the back burner. Some days it was not possible to do either. IN 2008 I hurt my neck and shoulder putting my suitcase in the overhead bin and thought I would try acupressure for the pain. Big Mistake!!! I had a horrible reaction to it and felt like I was being electrocuted with thousands of volts of electricity. It did something to all of my nerve endings and I have not been the same since but, had to continue working.
I have now been retired 2.5 yrs and was doing really good until it was time to buy a new bed. OMG!! I am on my second one and they both have inflicted intolerable pain on my entire body. Burning, tingling, stinging, deep muscle aching and weakness in my arms and legs. I am at my witts end and not sure what to get next. This is going to be costly. I have spent hours reading trying to find info that will help me decide. I don't trust most of the claims and think the problem is too much padding in beds now... all these "foams"... memory foam, comfort foam, gel foam, cool air foam... too much. My old bed was 12 yrs old Spring Air and I never had any pain from it. Don't know what to do next. You have to push yourself to be active. Sitting around makes you feel worse. You can't give in to it... walking every day helps. Stretching and moving around. Good luck.
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