I have had chronic or recurrent urinary tract infections for the last 3 months (before that I had them really bad back in 2013). I don't know what is causing them, so I don't know how to prevent them. I'm in so much pain! I can't even live my life. I just want to know that this pain won't last forever. I'm sick of hospital visits and iv's. Once again I'm on keflex and still in pain. They said I have a "raging" uti last night. How does this happen?! I drink cranberry juice and Gatorade, no more caffeine or energy drinks for me. I wipe front to back. I always pee after sex. I never hold my pee. I try to do everything right, but somehow I end up back in pain with a "uti", ct scan said my kidneys were swollen, but doctors don't think I have a kidney infection so idk. Im losing hope :( does it ever get better??
It could be all sorts of things. It doesn't help that you now have multiple pathologies; bladder and kidney infection also. Clearly you have some highly resistant bacteria (which is the prime reason for ALWAYS completing a course of antibiotics) but I can't offer advice except always have a spare antibiotic script available. The sooner you can attack it the better things are. I have a sister with MS who is similarly disadvantaged with chronic infections (UTI"s) but having the antibiotics available as soon as signs of an infection appear she doesn't have to wait 24 hrs to see a doctor by which time the infection is far worse.
I'm so sorry to hear of your UTI problems - and I've been there many times before. It was necessary for me to have my urethra enlarged shortly after I was married way back in 1973. That seemed to help, but then I remembered I had to be catheterized for 5 days when I was hospitalized with my first daughter, as during the delivery my urethra had been compressed. I started having what I thought was constant infections around 2000 and finally went through a procedure as an outpatient that checked my bladder under anesthesia. I was diagnosed with interstitial cystitis which feels like a chronic UTI but no infection is present. I tried Elmiron, which was the only medication approved for treatment of IC at two separate times without success. I've had countless instillation's where medication was inserted into my bladder and they seemed to help for a short time. Now I take 300mg of Gabapentin 3 times daily and this med has made a difference.
If you reach a point when they tell you there is no infection present you need to look into a urologist that understands this disease. I've recently had extensive surgery to repair scoliosis and it has shifted by center of balance so that I am experiencing what I truly thought was an UTI and saw my current urologist yesterday, but no infection is present. He did give me a script for Cipro as a precaution, and I've bought a huge supply of the moist wipes so I can be sure I'm clean after a bowel movement. You probably are simply having a recurrent UTI and you might ask for a different antibiotic next time. With IC you usually avoid anything acidic, which includes cranberry juice and orange juice. I believe the best thing you can do for yourself, whether it is an infection or something else, would be to drink plain water.
I sincerely hope this resolves for you with no incidence of anything but an infection, but if something else crops up please do some research on different bladder disorders. All the best to you!
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