... was just diagnosed with pancreatitis idk if its acute or chronic.I go see my regular doctor in 6 days.Is it possible to have had this disease all along and they never knew it? I have had the same symptoms all these years.I have horrific stabbing pains in my upper abdomen and straight through to my back.I have spells of vomiting and unable to eat or drink anything at all for 4-5 days and then i finally crawl to the ER and get fluids,IV form antacids,and something for the nausea,usually zofran.Gallbladder was removed 15 years ago and it didnt help one bit with the vomiting or pain.Are my levels that detected this disease to begin with still be elevated when i go for my appointment if the attack is over?Do you think it's possible that this was my problem for all these years and they never caught it til now?Any and all advice or thoughts on this matter will be greatly appreciated.Thank you in advance :)
Yes it could have been your problem after all the years. Long-term, or chronic, pancreatitis may occur after one attack, but it can also happen over many years. For the levels being detected I really don't know. Hopefully someone with more knowledge will be by soon to better answer your question. I hope you feel better soon.
It sounds a lot like chronic pancreatitis. I am so sorry that you have been going through this for so long without being diagnosed. It most likely went undiagnosed for so long because the levels are much higher at the beginning of an attack. There is a good chance that they won't be elevated towards the end of the attack or by the time you see your doctor. Until you get good specialists, you should always go to the hospital as soon as the attack starts and gets really bad. You need to be on an IV to get medications and to keep from getting dehydrated, the attacks are doing damage, you need to be under doctors' supervision. Most importantly, you could go into shock and you need pain medications, you shouldn't have to suffer like that. Some attacks aren't as bad as the others and can be ridden out at home if you have the right medications.
My best advice is to get a good pain management doctor and gastroenterologist. I'm able to stay home for the not so bad attacks because I have good pain medications. Always call your gastroenterologist as soon as an attack starts and they can help you determine if you need to go to the hospital or if you can stay home. The gastroenterologist will need to find the cause of your pancreatitis, that might take a while. I have been through four gastroenterologists, the first three gave up finding the cause. My current one wouldn't give up and finally after 11 years and too many ERCPs he found a partial obstruction of the pancreatic duct. It's a birth defect and I just have to live with it. It was such a relief to find the cause! When the second and third gastroenterologists couldn't figure it out they had the nerve to tell me that they thought it was caused by drinking too much alcohol, that I was a closet alcoholic and was lying to them about it. I knew that they were wrong and I wanted to just give up. Luckily I met this great gastroenterologist during a hospital stay and he convinced me to let him try to find the cause.
Finding a good pain management doctor can take a while, most of them don't want to deal with chronic pancreatitis and a lot of them aren't familiar with it. Ask your doctor if the know of a good pain management/physical medication doctor. I went through five before I found one that knew how painful chronic pancreatitis is and that really wanted to improve my quality of life. He put me on morphine and Norco. He helped me for a few years until he moved. It took four months to find a new one, but the one that I have now is fabulous! It turns out that morphine is bad for pancreatitis, it causes spasms which can set off an attack. My current doctor has me on Opana ER 20 mg twice daily and Norco 10/325 four times a day for bleed through pain. I still feel the pain but it's bearable. You shouldn't have to live your life in pain, you have already had to live with it long enough!
I am 47 now, but I started having symptoms when I was 14. My doctor at the time had no idea what it was but he gave me pain medications to help. When I was 16 they were doing tests to try to find the cause. They gave me a lower GI and that triggered an attack, I was in the hospital for a week. They had no clue what it was, they didn't think to check my amylase, lipase or other levels because it's very rare at 16. It only happened because of the test. My first real attack happened when I was 28 and I have been having them ever since. On my first regular attack, we took a while to go to the hospital, by the time that we went to the hospital, I was in shock. They diagnosed me immediately because of the levels. I had gone through years of pain before I had my first regular attack, so I know how you feel.
Just be thankful that they have finally diagnosed it and now they can come up with a treatment plan. I hope that you are able to find some great, caring specialists that can help you improve your quality of life. It might take a while to find the doctors that are right for you, just don't give up until you find ones that are a right fit for you. I wish you all the best!
I think that as been in your problem your whole time.you describe everything as chronic pancreatitis.and I've had it for 3 years.the pains are awful.I can lose my appetite for 3 or 4 days.I'm 6'2 and I was down to 118 pounds couple years ago.they have me on enzymes and my daughter doesn't know what else to do.and pain medicine.good luck hang in there.
I'm only 21 yrs old but was in the intensive care unit for 31 days with pancreatitis at only 19yrs old in 2012. Ever since, I have had chronic pancreatitis and the past two years I have been miserable. In and out of the hospital, job problems, ect. At this moment and every moment since Nov 23rd,2012 on life support, I have been in chronic unwavering pain. Some advise from my experiences with 9 surgeries and all the above is to BE HONEST WITH YOUR DOCTORS, and SEEK OUT SPECIALISTS ESPECIALLY. DO NOT BE AFRAID TO TELL THEM YOUR IN PAIN, where I live a lot of people ruin treatments for others who really need it so doctors are not as open here. Also find a doc your comfortable with, me personally I like to have a female doctor. AND DONT BE AFRAID TO ASK QUESTIONS AND GET A SECOND OPINION. It's your healthcare don't let a person that doesn't know what you are going through dictate your path. And assemble a team of docs to take care of you. For me it's my: 1) primary care physician then 2) GI doctor (will be your best friend haha )
3) endocrine (my damage to the pancreas was severe enough to put me into type 1 uncontrolled diabetes)
4) pain management doctor: physical therapy just hurts me, but try it, walking when you can, but healing is most important, even minimal damage to the pancreas can take up to 6-9 months to heal completely. So be careful and BE CAREFUL WITH PAIN KILLERS. But use them to get better and stay on top of pain control, even if you feel okay, and it's time for your dose, take it anyways and as directed. No more no less. I knew better so I titrated down with docs guidance and just taking Tylenol. But it's not enough, ever. So double a double-edged sword. My GI Surgeon said this quote, "in order to fix/relieve one problem (pain) we cause and give you another (addiction/dependence)." Sorry this is very long and if there is anything you could give me for advice to bounce off each other just let me know or just to talk to some one who knows what you're going through and let NO ONE take that away from you.
Hope this helps!
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