... chronic pancreatitus with acute attacks. The other injuries have healed but this extreme pain has had me hospitalized 5-12 days a month or more . the pain meds in pill form dont do much at all. The pain relief i do get is iv in the hospital. my bp has gotten very low . even on pancreatic enzymes i just cant seem to find anything to help me get back to where i was when this happened. i trust my drs completely they have sent me to others for more information but it seems there just isnt any help. i am beginning to get so depressed my husband is getting frustrated adn i feel like we are short changing our 2 year old. is there hope
hi moonshine,i am a 42 yr old guy who was diagnosed with CP in 2010.Suffered for 10 yrs before i was diagnosed,by then so many acute attacks had damaged it alot.In 2010, Dr.Gary Vitali at university of louisville removed 85% of my pancrease and my spleen.First 2yrs after my surgery I felt much better eventhough recovery and a second surgery for a abcess 2 weeks later was the hardest time in my life!!! After 2 yrs the pain started to come back and continue till this day.Please dont let this discourage you,I know other people who had the same surgery with relief from pain.It is only a small % that do not get relief from this surgery.As far as meds I am lucky to have found a great family dr after my surgery,and that is crucial ! I take percocet 10/325 3 times a day and dilaudid 2 mg,2 tablets every 4 hours for breakthrough pain.Eventhough I have to go to the ER when oral meds cant keep up and IV dilaudid 2MG bolus(2 doses) is all that will help, my family dr. is very understanding.The ER docs and nurses are less than kind,everything from im making it up to im just a junkie because with 15% of pancrease left my amylase and lipase is rarely elevated.They went so far as to send me home once and told me not to come back until my family doc approved then treating me !!! Thankfully he backed me up 100% If i could only make them feel the sword going through my front and hanging out my back, they might feel some compassion.I know it is easy to become depressed but you have to fight it for your husband and child.Get a good DR for pain management,and pray hardest when its hardest to pray.
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