Hi all. In March and november 2008 I had surgery to my shoulders to remove spurs. In March 2009 I was told I had chronic pain syndrome. Since returning to work full time in February 2009 I have been in more pain than prior to surgery, but not my shoulders! No, the rest of my body has decided to turn against me with pain in my upper back, legs, arms, wrists. I have had 2 "flare ups" where I have hardly been able to move, i'm stiff, my skin hurts. I dread getting a itch for example on my back as it smarts for ages after . I have had blood tests done for rhumotoid arthritis but came back clear. I have 2 physios telling me that there is something else going on. I'm getting seriously frustrated! I'm 40 yrs old going on 90! Is there anyone else out there with something similar ?
I live with chronic back and thumb pain. I have had two surgeries on my back and thumb reconstructive joint surgery. I too suffer from arthritis. I really can't or don't know why you would be having that kind of pain unless something else is going on. Have they suggested an MRI or CT Scan? I don't know if that would help. But I really hope you find some relief. If you need someone to talk to there are lots of folks on this website that are willing and ready. kimmie1
i would read about fibromyalgia or reflex sympathetic dystrophy(RSD) and see if any of the symptoms match what you are going through.sometimes a surgery or even a simple injury can cause RSD and it can spread quickly if not treated correctly. it's like your explaining where the original injury doesn't hurt as much but another limb or all limbs are in severe burning,aching,deep bone pain that are sensitive to touch.there are many other symptoms as well.I have RSD and my original injury was a surgery in my hand and nerve damage along with a few herniated discs in my neck .
then all the sudden i was and still am having severe pain in my legs it started with the left leg and now spread to the right leg.doctors often misdiagnose this condition and say they think the patient has fibromylagia.the reason your symptoms caught my attention was b/c you said your skin hurts that happens with RSD .i would definitely research it online and see if your symptoms match b/c if untreated the pain will get much worse and most of the time it takes you seeing several doctors for a correct diagnosis.i would see a pain management specialist if your not already.
Thank you so much for your replies. I will definitely look into the fibromialgya. I've had 2 physios say at separate times that "there is something else going on" and I'm going to the GP this week so I will mention it to him and hope he can give "it" a name at least. Thanks again!
I agree with the others about the "fibromyalgia". I've had fibro since 1996 and my body feels like one big bruise! Some days, it feels like even my hair hurts! lol! (i laugh to keep from crying!) There are sooo many sites to find info on fibro. One that might be helpful is www.fmaware.org. It's the National Fibromyalgia Association. My favorite support group is www.fibrotalk.com. Some super nice folks there will answer any questions you may have.
Hope you get to feeling better & Good luck to ya!
"Somedays I'm the windshield; Some days I'm the bug!"
wow, i felt like i was the only one out there going through this!. i had surgeries on both of my knees and my knees are in costant pain. i alsways say im 26 going on 90. i am misserable... and i dont think a lot of dr.s really understand how painful this is. its so bad sometimes i cant get outta bed. and my mood has changed, hurting all the time tends to put u in a bad mood and a little less patient. i just wanted to let you know... YOU ARE NOT ALONE WITH THIS!
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