... turkey. I'm doing OK with that. But the pain is excruciating in my spine and I had to call my PCP last night. Her med assistant called me back 15 minutes later and said she would have the dr call me this morning. I told her I didn't want to be prescribed any increased dosages of those meds as they just don't work for me and I just have to take more And more of them. I didn't mention I stopped taking them. She said that my dr might prescribe the fentanyl patch for a short term until pain management gets my pain under control. My question is... do I want to do this after I have successfully gotten off these other meds? I've read bad things about this patch on this forum so I don't know if I should agree to try it. Just not sure how to respond to her. I have 3 herniated discs, sciatica ( which pain management is successfully treating) and scoliosis. Any advice before she calls would be appreciated. Due to my pain level and prior drug use the only time I leave my house is when my husband drives me. I'm tired of being stuck here in the boonies. Will I be able to drive again with this patch?
Hi Wendy. First of all how long have you stopped taking your pain meds? Depending on how long you have been on them, you may start to feel the effects of withdrawal. These are not very pleasant at all. Diarrhea, chills or sweats, cramping, not sleeping etc... It sounds like you are not giving your meds time to do their job. The oxycontin is a very low dose, & I understand you don't want to be taking pills forever, but sometimes with our backs, when surgery is out of the question, it's the only thing that allows you to have a life. You shouldn't be starting & stopping alone without your doctors knowledge. He cannot guage your level of pain that way. As far as the fentanyl patch is concerned, I haven't really heard that much bad about it at all on this site, & have been a member for quite a while now. The biggest problem seems to lay in keeping them to stick on the skin.
It takes the very first patch about 12 hours to get the level of med in your system where it helps. This is the reason they give you break thru meds along with it. Also the same for oxycontin. Sometimes we do things that make our pain worse, & we need a little boost from the breakthru meds.To me it sounds like you are not giving these meds time to work for you. Of course quitting them all together your pain levels are going to be really bad. You should have been honest with your nurse or PA or whomever you talked to. Yes, they may have increased the oxycontin, & you may have found out the higher dose works much better. Have you had a consult with a neurosurgeon yet? it sounds like your PCP is doing all the prescribing. They have many new minimally invasive procedures now to fix herniated discs. They seem to be more effective than the old laminectomys. As far as the scoliosis, if you didn't know you had it before the x-rays or MRI's, I doubt it is giving you any problems. Many people walk around their entire lives with scoliosis, & don't know it. It sounds like a horrible disease, (I have it too along with your other problems & more). I think you need to give the oxycontin a longer chance to work, & also take the increased dose if they offer it. Please be honest with your doctor about stopping the med all together. It can't work if you don't take it ,& now you are afraid of taking something even stronger. You have decisions to make that only you can make. You also mention that your 3 herniated discs, & scolisosis is being sucessfully treated by pain management, but you are still seeking pain meds from your PCP? What gives there? If you live in the US, you should have had to sign a contract with your pain management doctor that you CANNOT get pain medication from any other doctor. Getting pain meds from your PCP puts your contract void, & when the pharmacy catches this (& they will) you will be dropped as a patient & considered a drug seeker. I am not telling you this to chid you, but as a warning. If pain management has your pain from the herniated discs,sciatica, & scoliosis under control, what else are you seeking to treat with your PCP? Most states are under MAP which is a system of watching other pharmacies for opiad prescriptions that come through. Be very careful if this is what you are doing. I might also suggest you try some therapy for your pain issues. It can really help. As far as lifting your 11 year old goes, unless he is disabled, he is old enough not to have to be picked up physically. Infact he is old enough to help Mom around the house & give you a break once in a while. Kids today need more structure in their lives, & believe me it would be to his best interest, & should help you out some. Best of wishes to you...
It seems as if you are having guilt about taking medication to control your pain. Are you getting grief from people around you who don't understand chronic pain, or the fact that you can take these meds and NOT be an addict? I know that I went through the same thing with my family. In fact, I'm sure that the 'fringes' of my family still don't understand, but I simply don't care anymore, because quality of life to me is more than their opinions.
If you are taking the correct amount of pain meds, then you should not have any problems driving or other activities that require full attention. You might have to wait sometimes until your body is adjusted, but that is few and far between. Herniated discs, and scoliosis never go away, so why do you think that the pain will go away. Some people don't ever take pain meds, and if that is what you want then go for it, but I personally would be stuck in my home 24/7 if I didn't do something for my back. I don't care what others think anymore, it's my life, and I want one!!
Best wishes to you, and I hope that you find the answers that you are looking for!!
I read your other question, and after reading all, I get a better picture. Since they have changed the formula on Oxycontin, it has caused many people to become sick, and/or not work. Me being one of them. I totally understand. Re: discs. Please, don't push for surgery. I have never known anyone, including myself, whom surgery has helped. You really only want to have it done should you start losing function in your legs, arms, wherever the nerve is impinging. Otherwise the surgery does not help with pain, and if it does by chance, it can cause other pain, as with me, or the pain comes back 10 fold. Scoliosis gets worse as you get older. You may not think that it is causing you any pain, but that could be a big part of your problem. Since you walk differently because your spine isn't straight, you change the muscle positioning in your back, causing many spasms and other problems, also pressure on the spine.
Picking up your loving child also puts pressure on the scoliosis, though of course you wouldn't even think of leaving him down when he needs mommy. I totally understand that!!
There are many other pain meds out there that can help you besides the Oxycontin. keep away from Opana, as it also has been changed, and you will have the same problem with that medicine also.
Best wishes to you, and kiss your baby :-)
Avoid Fentanyl if you can. Although it help[ed with the pain for me, 200 mcg QOD I wound up getting arrested after the M.D. injected something into my spine while i was taking Duragesic. I guess 1+1=3 at that time. It was like driving while unconscious. It cost me $9,000 pl;us los of license etc. among toher things. Now I take MSIR 15mg prn, MSER 30 mg bid and Toradol injectable prn >3 per weeek and have implanted neurostimnulatror. Good luck.
Dear chihuahua lover, Hi there. I just wanted to add my opinion. It may or may not be right, but I will give it anyway because it's my opinion. I have several conditions in my lower back that cause me to deal with chronic pain. I went through a roller coaster ride trying to find something that would help with the pain enough for me to get around at all. I too was prescribed the Fentanyl. I was leary at first too, but it worked great for me. I started out kinda low and simply told my dr. it didn't work and he upped the dose. I definitely think it is worth a shot to give it a try. People are going to tell you a lot of different things. Ive gotten to the point where I don't care what people think. They are not me. I had to try several meds over a course of time, and it wasn't the greatest thing. And having remarks made about it for the whole site to see, was over the top for me, and I caved in for several days. But what doesn't kill you makes you stronger.
Dont over guess and over worry. And if someone tells you yes, take it, and another says no, dont. Dont drive yourself crazy over whether you should or shouldn't. That will drive you nuts, hon. You can't stay couped up in that house in pain and not have a life. Period. I've done that and it was horrible. If your dr. thinks it's best to go with the Fentanyl, then by all means, try it. She is your dr. You need to say a little prayer to soothe your mind and body and tell yourself... I have medical problems that cause me chronic pain that makes it to where I cannot go outside. This will help me... not harm me. You have to get to a point where you have to trust something and try it. People on this site are absolutely wonderful and most of them are the best advise givers in the world. But when you have different people telling you to take and not take the medicine your inquiring about can confuse you sometimes. I pray that you will firmly talk to your dr. about this and everything works out fine for you. Please let me know how everything works out. Peace and many blessings to you. Ruthie
The good thing about using patches, either Fentanyl or Butrans, is that they'll provide continuous, long-term pain relief. You won't have to go through those 4-6 hour cycles where your pain has gotten bad again before it's time for you to take another pill. Plus there's nothing for you to digest so they might prove to be easier on your stomach.
I think it would be worth giving the patches a try. It sounds like in your particular case that the benefits would outweigh the risks. Whatever you decide, I sincerely hope you find something to ease your pain.
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