... CML diagnosis?
CML does not have the type of "remission" that is a standard of measurement for many other cancers. The goal of treatment for most CML patients is to obtain, and then maintain, specific levels of response to treatment via targeted oral therapy. The responses are hematologic, cytogenetic and molecular. You can find more information about response from the National CML Society website.
It is hard to say whether you will feel like you did "before" after you reach your treatment milestones. Most patients experience side effects from treatment. Some find they lessen and become barely noticeable with time while others have had life-threatening issues. The important thing is to fully understand your personal level of response and to continue to be monitored through testing on a regular basis. With proper treatment and monitoring most CML patients can expect to live a normal lifespan today.
This may seem like a daunting diagnosis with an "iffy" prognosis. It is scary indeed yet how you approach challenges will better determine how you cope and feel. How you feel is all relative, too. Every body is different so whether you will "feel" like you did before is difficult to say. Continuing your treatment plan and journaling how you are doing will help. Keep all scheduled appts. and if possible, take someone with you or take a tape recorder so that you have the support you need or means to help you remember your progress.
Perhaps joining a support group can aid in maintaining a positive outlook. Just know that there is support for you and that will help you cope. While this may have you feeling a bit disconnected from life... the better informed you are and remaining proactive in your care may take you on a different kind of journey. You may even find a new voice within yourself to aid others on their journey, too. A positive attitude will enable you to make those important decisions along the way, for instance. Medicine has changed so much in the past 10-20 years that you never know if a new treatment isn't just around the corner waiting just for you.
hello I was diagnosed with cml in December 2013 and am currently working on achieving MMR although my numbers are not where they should be yet I do feel like my old self with the exception of a couple of side effects that I deem miner. 1 am sensitive to the sun but sun screen and proper clothing take care of that. 2 every once in a great while I have a "tired day" and this is remedied by some extra rest. I have returned back to my normal life with work, hobbies, etc... the most important thing is to keep all of your appointments and take medication remember knowledge is power!!! there are a lot of info on the web to help you understand your journey as are people who share it. I hope this helps with your question, God Speed my friend and may your journey be smooth
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