... She is in the hospital and back on dialysis. She cannot keep down any food. The doctors say she may not be a candidate for another transplant as the disease is now attacking the new kidney. What are her chances for survival, and how long can she live on dialysis?
Welcome Int4keri, & so sorry to hear of your grandaughters plight. I think your best place to find answers to these questions are going to be the kidney secailats that are handling her care. I as a grandmother also hear your plea, & hope all turns out for the best for her, & you also. Grandaughters are so very specail. I will keep you & her in my thoughts, & hope all comes out for the best for both of you...
So sorry for this suffering. That answer is such a gnawing feeling. One thing you can do is to sit with the doctor and have a long and detailed heart to heart talk as a family. The doctor would be discussing what to expect, what you can do to make her comfortable. If you have a paster or priest you may find comfort there. Hospitals have social workers who can help you connect with resources and help. I suspect you are still in shock.
For her, a brave face, games and happy visits are important to receive. Keep her laughing and looking forward to life. One never knows for sure how these things will go... as adults we fall apart when they don't see us. Kids handle this very differently from adults. You will be amazed by her. Support the mom with whatever the mom needs. Be it dishes washed or a night out as you babysit. If the parents want distance so they can adjust, don't take it personally, they are grieving as well. A grandparent has a very special role. This is your time to be present and set your needs aside when with them. Just like you did when your child was young. Read about this, talk about this, share. I wish you well. Blessings to you and the lovely granddaughter.
I have been on dialysis for over 7 years now, im the youngest one at our center but I have met friends there who have been doing it for almost 20 years. She is still very young, her life is far from over she just has to keep that positive "i can do this attitude", support from family helps too. She may wanna consider home hemo (do your own needles) or pd dialysis that way she has more freedom to do dialysis whenever she wants and no limits on food and drinks. All she needs is someone to be with her for training, which only takes a few weeks. After they get all the built up toxins out she should be able to hold down some food. The machines now for home dialysis aren't much bigger than a desktop computer. Prayers!
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