... of meds as needed for diagnosis's. I am literally tired ALL the time. I never feel rested when I do sleep and spend a lot of my time in bed because I simply do not have the energy to do anything. I am to the point leaving the house is only when no other choice. I see a pain doc, a GI doc, and a Cardiologist. They all have reasons I am so worn out, but no solutions. Alot of my 14 meds have that "may cause drowsiness" label on them so no doc will give me an "upper" to get thru the day. Over 15yrs ago I had a PP that gave me Vivactal to take during the day and Halcion to put me down at night. Didn't last long as during a hosptal stay a doc told me that was a dangerous combo. I was literally taking something to keep me up in the day and something to knock me out at night. Long gone are those days. I don't feel rested when I manage a few hours sleep, and have no energy for anything. I know I am sick with major ilnesses, but, the amount of energy I have for life is so minimal its hardly worth getting out of bed, and many days, I don't, but STILL can't sleep. Anyone have any ideas or tips that might help me have some energy every once in a while?? I am so seriously "tired" all the time I have stopped meeting friends, visiting family etc. I feel like my life is passing me by, and I am not a part of it. Depressed?? Yes, who wouldn't be when they are either sick or tired, or sick and tired every single day. I cannot remember the last time I felt okay. This fatigue is weighing me down to the point I really don't care if I live or die. What do you do to get thru these trying times, feeling so faigued??
Good morning, ChelleKay!
When I was going through chemo and radiation, on morphine for pain, etc., the doctor gave me Provigil for fatigue. It was short term while I was on chemo, but it helped with the extreme fatigue. Most importantly, though, you need to force yourself to be more active. Small steps! Walk around your house twice a day, or walk to the end of the street and back. If you stay in bed or sedentary your muscles can atrophy, you can develop blood clots in your legs, and your fatigue will increase. I'm not saying to go run a marathon, but you should force yourself to get a little more active. I know how extreme fatigue feels, and everything you do seems to totally drain you. But please trust me when I say that a little more activity will help you to feel stronger. Meds can only do so much. The remainder of the responsibility is on you. Been there, done that! I hope you feel stronger soon, ChelleKay!
Yes, you got some good advice from above. I have another suggestion for you. I know what it feels like to hardly have a life. I have to sleep at LEAST 12 hours a day or my chronic 24/7 migraines go sky high. And then I can only function actively for limited amounts of time. I rarely can see friends or go on errands. But I did go to over 100 medical visits in the past year. That keeps me busy. At one point, being in terrible pain much of the time, having severe migraines every time I went out to do my occasional work, and had to spend almost an entire trip in bed with severe migraines, ending up at the ER--that's when I got severely depressed. Just increasing my anti-depressant completely took away my depression. I was absolutely shocked since the depression was so situational. But yes, I still had some issues of resentment to work through. So please try an anti-depressant, or if you are now taking one, see if it can be increased, or see if you can try another one.
It could greatly change your outlook and help you to get up and get around. I am now happy with my limited life. It was a process. I am now grateful for what I do have.
Kathy, DzooBaby and Sara have all given you great advice already, but I thought I'd chime in too. I know how you feel because I go through similar days where I just don't feel like doing anything. For me, it's not every day but most days.
On the weekends, I go to church with my husband. I miss more days than I care to admit, but whenever I'm able I drag myself out of bed, get dressed, put a little bit of make up on, and go spend some time with people who know and care about me. I move very slowly and walk with a cane, so my friends at church are always coming up and asking me how I'm doing as well as praying for me and over me. Everyone always has suggestions of what I should do and what kind of natural treatments I should try. They just don't understand that I have tried everything. It's not always easy to make myself go, but when I do I almost always am glad I did!
I live in a mobile home park, and I have a little dog named Leo. My husband takes Leo for long walks in the morning and at night, but during the middle of the day I try and take him for a short walk, even if it's just around five or six mobile homes in my neighborhood. In fact, sometimes I just walk past the next mobile home and then turn around and come back because that's all I'm able to do. Don't beat yourself up over things you're not able to do.
I'm not sure who it was who said something about going on vacation and ending up in the emergency room. I had to laugh, because that same thing happened to me last year. We went to visit my hubby's cousin in Colorado, and I ended up in the emergency room with a bad case of bronchitis. Of course, my husband had to sit with me for a couple of hours in the E.R., and then I spent the next few days in bed while he and his cousin spent time together. After that, his cousin drove us around the countryside. I would have to sit in the car and wait while they would go out hiking if they wanted to see something off the road.
Now, in a week and a half my husband and I are going on another short vacation to Colorado. (It's actually a working vacation for my hubby.) He's amazing and does all the driving because I'm not able to drive.
I also wanted to tell you about what happened to my husband when he went on treatment for hepatitis C. He was put on interferon and ribavarin, and he went into a terrible depression and had absolutely no energy whatsoever. I recognized the depression immediately, and I had him go tell his doctor that he needed something for the depression. He was placed on an antidepressant called Effexor. It worked wonderfully for him, as it took him out of the depression and gave him energy that he was lacking. So maybe an antidepressant isn't such a bad idea...
Good luck and please keep us updated as to how you're doing.
I'm sending positive vibes in your direction! :-)
I know how you feel some days I just cry, but I found the more I stay in the worse I get- have been in all this week, and its getting me depressed already. I joined a gym just to swim because its the only thing that doesn't hurt, plus I can sit in Jacuzzi and sauna which relaxes my muscles, but since Ive been sick haven't been. mainly I joined for the Jacuzzi but found the swimming is enjoyable and easy on my joints and muscles and gets some cardio in, also when I was really bad went to a non denominational church that welcomes everyone, I also see a therapist once a week so I can talk to a third party about all the pain Im in, cause others don't get it. my boyfriend is out of town and Ive told him how sick Ive been and today asks me if I went to the gym- seriously? also read a lot of wayne dyer books, and tried to watch funny shows stayed away from news and depressing shows. Ive said those exact words, but a lot of the meds are depressing to, have you tried massage, acupuncture? its not long term but any relief is good. please take care.
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