I'm Becky,45 from UK and was diagnosed with CEL in 2008,I have since been on hydroxycarbamide and various other drugs.
How long have you been diagnosed? What meds are you on? Does anyone have other health issues relating to CEL? I have chronic eosiniphilic gastritis,cholangitis,pancreatitis and achalasia,my Drs think that I may have had CEL for a number of years now and it has damaged my liver,pancreatitis,stomach and eosophagus.
It would be great to get some feedback from someone who knows about this condition!!!
Anyway hope your all feeling good today and hope to hear from you soon :-)
Chronic Eosinophilic Leukemia - At last I have found a support group for CEL!!! Hello to you?
- 16 Jun 2015 by Beckyboo
- 3 July 2015
- leukemia, chronic eosinophilic leukemia, chronic, diagnosis, drug
I'm sorry that no one from the CEL group has answered you. There are only 5 and I checked their activity and only 1 might still be active... her last activity was near the beginning of 2015.
I can help you with one product recommendation for the pancreatitis: Pure Encapsulations - Pancreatic Enzyme 60's. It has many positive reviews from other people with pancreatitis. It has a porcine (pig) source, and contains lipase, amylase, protease, just like Creon does, only it's FAR cheaper. If you're interested, look for it on Amazon. I don't know where else it might be sold. If you check out the reviews, I think you'll be quite impressed.
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