I have biopsy confirmed collagenous colitis. I am always losing weight and am up to 15-20 Imodium per day plus I know where every bathroom in every block of my community. Is anyone using cholestyramine for this? I am desperately trying to avoid the next step which is oral steroids with nasty and rebound side effects... I am wasting away
Hi Beeka, I've been using/experimenting cholestyramine for 2 weeks now. I'm using it for chronic diarrhea due to short bowel syndrome, due to my 8th bowel resection, I have Crohn's /Colitis for 38 yrs., now. My GI Dr prescribed it 1-packet 2x day mixed w/6-oz of orange juice. It worked for 2 days & back to going to the bthrm 20 x dạy! So I decided, & asked Dr if I could do 1.5 pkt instead of 1. He said yes. It worked almost 2 days, woke up in the night, and diarrhea all night, and day ! Yesterday I tried 2 pkts (yuck) so far again it worked this morning, but once I try eating the small 6 meals a day I'm told to do, it fails miserably! The box says to use it after every meal, or drink ... I can't imagine, but when you go to the bthrm as much as we do, it's weighing out which is worse I guess. I'm trying to find someone who's been prescribed other meds for diarrhea. All the normal meds do nothing for me either. I
took 16 immodium & it didn't touch it. I hope you find relief ! I'd give this med a shot it's worth trying. "Lynn"
I am now on a drug called uceris that has 9 mg of Budesonide. I know it's steroid based but it's working for me
I was diagnosed with collagenous colitis 4 years so I sympathize with you. My doctor prescribed Entocort which is a steroid but doesn't have the bad effects that other steroids do. It worked amazingly well for me, almost like a miracle. It's not for long term use though. I stopped taking it after my symptoms were under control. Since then I only occasionally have flareups. My doctor recently put me on Apriso which is an anti-inflammatory and it seems to be working well.
- Cholestyramine Information for Consumers
- Cholestyramine Information for Healthcare Professionals (includes dosage details)
- Side Effects of Cholestyramine (detailed)
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