I am not sure what has changed, if its federal, state, DEA or FDA, but something major has changed and there is not one physician from family practice to pain management clinics that will humanely prescribe necessary pain medication. I am currently with a pain management clinic and have been so for over a year. I have been fortunate enough to have had them treat my chronic pain properly for only 4 months out of the 14 months I have been with them. I was actually getting better or at least feeling a lot better from Fibromyalgia, Chronic Myofascial Pain Syndrome and low back pain due to arthritis, buldging discs and degenerative disc disease. Anyway I was on shot number 2 of 3 lumbar epideral (?) where they use flueroscopy x-ray to see where they shoot you in the spine with a combination of steroid & anesthesia (only I don't have the steroid put in) and she must have wacked a nerve out of place because my pain rocketed to a 10 for over 10 days. I had some vicodin and it did help a little and only for two or three hours at a time. I called the office and they said it couldn't have been the shots, yeah right and when I went back in for a follow up the pain had eased a bit, but they still wouldn't raise my dosage of vicadin. Finally this month after crazy amounts of pain and crying, wishing I could just die, they raised me from 3 7.5's to 3 10's which is not much more. I told them I needed to come back in in two weeks not a month. The Nurse Practitioner said she couldn't raise my dosage any faster because she could lose her license??? Because I have been so frustrated with this clinic, I have called every single clinic in my city that takes my insurance and every single one of them say first thing on the phone that they do not prescribe any narcotic pain relievers to their patients. I told one that my neighbor see's that Dr. and he works with her and her pain. She said moving forward all new patients will not be receiving any narcotics. You know they make you feel like #$%& like being in pain, disabled by it, unemployed because of it, on Medicaid, Food stamps, government housing & living off of only $157 a month is not bad enough. Now in addition to all that and all the prejudices that go with that I now get to be prejudiced against for the pain that caused all those other prejudices. I will not live like this, I just won't. The additional psychological problems that come with chronic pain and then this. Sooo... what I want to know is who to address my letter to? Who do I send my note to when I can't take it any more. They need to realize that while death's due to overdoses may go down, death's due to too much suffering in pain will go up.
And it won't be the same people dying. The od's will be people who aren't productive members of society. Start with the President, then the attorney general. All your representatives. Its the DEA and the FDA plus the state organization. I get 2 vicodin a day for my pain. If it wasn't for the shots in the trigger points I'd be in agony. The least they could do is make marijuana legal. It works great for fibro pain. They have been locking up doctors as drug pushers and taking all their assets because they got it by pushing drugs and taking their licenses.
I believe it is the new health care law that has by bits and pieces come into law. An example is the VA and there policy on opiates. My husband has severe osteoarthritis, had 2 hip replacements(one for 1 of the defective metal hips) 5 shoulder operations, and severe arthritis through out body. For the last 5 yrs he's take vicodin 750/325 x3. This year when he goes in for his annual physical he didn't receive a rx for the vicodin and was told to take a rx of Naproxen. Was told the "gov" was really cracking down on Dr.s. There was no concern if he would have any withdraw or other issues, which he didn't. This is what is going to be in our future, I've gone to a PMDR for trigger pt and cort, shots and got my pain meds from my PCP. The last time I went to PMDR was first sent for PT on my back. The gov. has basically tied the hands of our Drs.
As stated in another post we (baby boomers), elderly and disabled are going to be systematically weeded out of the health care industry. This group is a big drain on the finances of the country without adding(taxes & work) There has been a big push for medical mj. Which I have no problem with but for the average pain pt. maybe hard to get and afford where not legal. Now on tv I see studies coming out about mj changing the brain. The gov. will step in again and "protect" us. Things aren't good for us who suffer chronic pain.
I don't see you mention your age which maybe be used to "profile" you as a drug seeker. Maybe try an ortho Dr who may order new tests to confirm your pain. Good luck hope you get some help.
And they wonder why more and more people are left with no choice other than to try to find they're own relief somehow,someway anywhere else. Its so darn sad that they can't find help from they're own doctors. They make people in pain feel like criminals already anyway,so why not just be what they're already making you feel like. People need pain relief! If they can't get help from they're docs than by golly at least find help on your own. Either that,or suffer. So very sad :(
You have a valid complaint, and I have been where you are at now. I am a disabled veteran that continued to work after I got out of the Military while I still could, because of that I carried insurance and paid for real Doctors and not VA Doctors. After breaking my neck I spent a great deal of time on Narcotics and then when they weren't enough anymore I went through withdrawals and Suboxone Therapy. I spent 5 years Narcotic free while in the mean time had two more major fusion surgeries and was basically crippled. But I learned to live without pain meds and just suffer.
A few months ago I had a new compressed disk above a fusion region fire up which led me to the ER, it was at that point I decided to go back on pain meds. Because I have taken Suboxone in the past no physician wanted to treat me for chronic pain, but after I had the doctor that worked with my condition talk with a pain med specialist they agreed to see me. I spent 4 days over a period of a month trying to get the VA to treat my condition with no care at all, it was actually the largest insult I have ever seen for my service and injuries related to my service, if I did not have insurance through my wife's employment I would not be able to get care I have today.
But now I am faced with a double edged sword, I am taking pain meds again and they make me feel terrible, they do help with the pain, and myself and my wife are wondering if I should just not go through Suboxone therapy again and learn to live in pain once again. I can freely admit there have been days where I could have easily committed suicide, but the system does not care about people committing suicide, you are just one less burden they have to deal with.
Write to everybody you can, start with your Representative in Congress and work up. If you get a form letter back from them then call their office directly until you reach them.
But I want you to be very clear about something and I think most people that go to pain management offices can testify to this, the people that work at the pain management offices are usually jaded, fowl, unpleasant, and just appear to be angry that they are even there. I think they become this way because they work with patients that are constantly drug seeking and miserable, and they themselves get tired of working with people like that. So when you contact people to complain please do it with a warm heart and as an intellectual, people are more willing to listen when a person is well composed.
There are a whole bunch of new laws on the books and if I wasn't suffering through the changes myself I wouldn't understand your position. I don't want pain meds, I want a normal life again.
Dear mfpdfibro, First of all I think pain management clinics are only staying open for the money. They treat you right when you first start then take you off of what you truly need after a while. they do not tell us but they get away with this by charting ACUTE. I have read a lot of Q and As on this site and you really laid it on the line. If we all were not all so afraid and need this medicine we should do what ever it takes to put these sons a ******* out of business. Especially the ones that only take cash because they wont or can't take our insurance and most of them got ran off from some other clinic for God knows what. That is my response to your question about why did pain management stop being pain management. Most of them are walking a thin line anyway. I will pray for you and you pray for yourself also.
It seriously depends on the state. My family all have degenerative disc disease and have undergone multiple fusions/ replacement discs/ injections. Those of us in states with a large population of retirees like FL, AZ, and NM and in the Midwest have an easier time receiving help. NY and CA have many more laws restricting what docs can do or are willing to do out of fear of losing their license.
I couldn't agree more. 4 ruptured discs in my spine, yet they act suspicious and treat you lesser-than, even while looking at the MRI in front of them. My pain Dr just moved his office 2 hours away from where he was on Long Island, I'm having real trouble finding a new Dr because they're so suspicious of everyone (even tho mine is fully approved and fully covered by workers comp), and I honestly am on the brink of giving up hope of recovering, hope of even managing the pain, and very much losing the desire to go on living. YES, some people abuse it.. Does that mean the legit patients should just go away and die?? If that's what they're pushing for then they're getting close to winning, and I hate both them and myself for it.
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