I was put on Butrans for 3 different chronic pain conditions. I had some struggles with other narcotic pain medications, mostly because I need around the clock treatment. I tried Suboxone from a friend. Suboxone is a mixture of buprenorphine and naloxone, (buprenorphine being the narcotic in the Butrans patch), and was amazed at the relief and energy I had. (I have fibromyalgia and am tired ALL the time). So I went to my doctor and told him the truth, that I had tried the Suboxone and he prescribed me the patch, even though he really didn't even have the license for it. (Great doctor! although at this point, not much more he can do) So anyway, my question is... I've tried the 5's, felt nothing. He moved me up to the 10's, and still no results. After adding another 5mcg patch to the 10mcg patch (to make 15mcg per hour) with still no results, I have now had the 20 mcg patch on for 1 week and I have still not felt an ounce of pain relief. Has anyone ever heard of this or experienced it? I mean, is there something wrong with me or does this patch just not work on some people? I love my PCP and am SO thankful that he put his job on the line for me (if that's the case), but I am terrified to go to any more pain management specialists. I always feel like I have no say in my treatments, and like they are pushing things on me! Especially epidural injections for my spine, but I just can't handle them because of my fibro. I'm losing hope, because Suboxone is for addiction, and I think it's very rare if anyone at all subscribes it for pain. But it WORKS for me. There's also Subutex, without the Naloxone (which is what basically makes Suboxone for addiction and/or withdrawal), but I would obviously have to see a special doctor who can prescribe that. (And I have tried the Subutex as well, which works just as good as Suboxone). So, my question just turned into a large story, but as you all know who are in pain, it's a terrible struggle from day to day. And of course the people you love just want to help, but they also really don't want to hear about it anymore and that I can understand! I just wish I could find a great pain management doctor who treated me like my PCP does, but I honestly don't even feel like trying anymore since it seems it'll be an imminent letdown... well anyway, thanks to any readers... if you have an answer to my question, please let me know about the patch and if it's common for it to not work at all. Because even with the Suboxone, I could cut that into 3 pieces and eat 1 piece for a whole 24 hours which would completely eliminate my pain, so that was about 2.5 mg a day, and this patch I am wearing right now is supposed to be dispensing almost 3 mg a day. Whaaat the heck? :)
I too have fibro and subs worked for me. I hope you can find an affordable doctor who will prescribe it for you. You can go to the suboxone.com webpage and look up ALL the doctors in your area who are licensed to prescribe it. You might call and ask about the induction price and office visit price as well as if they also write for subutex, many won't. The fees I mentioned vary in price from doctor to doctor, and it is wise to check several. Sometimes they take insurance but usually not, tho your insurance may cover the meds. I sure hope I at least answered part of your question. I think it may be the difference between the subs films going under the tongue versus the time release of the patch that may be why you get more relief from the films. I have not heard many good things about the films, I suggest the subutex pills, number 1, there is a generic for subutex, but that is just a suggestion.People have often asked here is subs helps with pain, and several people used all caps in their responses screaming NO, but I disagree. Hope you get some relief soon. Patti
I am just like you. I have terrible pain with sitting and standing (pudendal nerualgia) long story. doc put me on Burtrans 20s. been on it since mid March..I cannot notice any real relief... so I am like you! I guess for certain folks or types of pain it doesn't work..That suboxone sounds great... I am going to ask about that. I have heard it mentioned on other forums...
I am in agony today cause I took the patch off for an hour and then re-applied to another side.. not sure if that is why (or cause I am experiencing higher inflammation from a recent procedure..I was told to expect the inflammation.
. I am about to try an oxcodone but I have very low dose 5mg Imm release... don;t know how much to take!
I dont want more urinary retention but the pain is awful.
Anyway I agree about the butrans... If there has been any relief I didnt notice it! Thx for the comments Hope you can get the med that helps Try a pain specialist?
hello, im glad to hear i'm not the only mutant..lol. I strated with Butrans 5mcg, now up to 10mcg, along with baclofen twice a day and just recently added Lyrica. I am not doing any better and I actually asked the pain doc if he was giving me a placebo. I have mucle, bone and nerve pain but noone can tell me why. So don't feel like you are the only one. I can't offer any advice except pray and hang in there.:)
One thing to note is that the position of the Butrans patch on the body is very important--top of arms, upper back, or upper chest which I am not able to apply there due to my sensitive skin. So my patch is applied to my thighs. I have both fibromyalgia and severe migraine pain. The Butrans patch does wonders for my migraine pain, but haven't noticed much difference to my fibromyalgia discomfort. Other strong pain killers for my migraines have also NOT made any noticeable difference. Most of my fibromyaliga pain is taken care of by taking the top dose of Trazodone.
I started Butrans patch 10 mcg exactly 3 weeks ago today, it started to work within 1 day. I had been on 10 mgs of oxycodone every 4 hours since 2009, I was tired of the roller coaster of pain and watching the clock for my next dose. The patch also prevented me from going into withdrawal. I have Rheumatoid Arthritis and Sjogren's Syndrome with constant, severe pain in all of my joints. I can't remember the last time I've felt this good. I do have a some pain but it's manageable and I have zero side effects. My rheumatologist had been prescribing my oxycodone, a pain management specialist prescribes my patch. I had tried every pain medication under the sun, from Motrin to oxycodone and everything in between. Lyrica was a joke and made me gain 40 pounds, as was Gabapentin(Neurontin) and biologics like Enbrel didn't work, either.
I even went as far as having chemotherapy infusions(Rituxan and Remicade) to try to cure my pain, to no avail. My rheumatologist gave me a list of the meds I've tried over the years to bring my my pain management doctor, it was more than 30 different meds. Insanity.
The first week I used the patch I put it on my upper back and it worked great. The second week I put it on my upper arm and for some reason it didn't work. I thought that either the patch was defective or it stopped working all together. After suffering for 3 days with no relief, I decided to remove the patch and tape it to the other side of my back to see if it would work and within an hour, I was pain free again. Now I'm not taking any chances so I just rotate it to different parts of my back. I put my 4th patch on today and also had my follow up appointment with my pain management doctor. For now he said I have to stay at 10 mcg but I think if he upped to to 15 mcg, I'd be totally pain free. If he keeps me at 10 mcgs I'm going to try CBD oil to see if it takes the remainder of my pain away. I belong to a chronic pain group and so many in the group say CBD is a God send and my pain doctor gave me the green light to try it as it won't interfere with the patch. I have my fingers crossed that the patch continues working, I don't think I could ever go back to taking pills every 4 hours for the rest my life and being in unbearable pain to boot because I've built up a tolerance to oxycodone.
PS. My pain management doctor told me the patch only works for pain in patients who have been using opioids for continuous, long term pain management. If you weren't taking opioids every day over a long stretch of time(at least 6 months), the patch isn't going to work. I do hope you find something that works, living with long term chronic pain is a living Hell. Please keep us updated.
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