Does anyone with BMS feel like they physically cannot swallow food? I have to drink lots of water to even keep it down and even then it just sits at the top of my throat. I don't know if I can go on much longer. The thought of food makes me feel ill. I've lost 11 kilos in 6 months and am on the verge of being diagnosed anorexic. please help
Hi Grace. What are your other smptons and which one of these appeared first? I have had this for almost 10 years and been to over 10 doctors so I will tell you what has worked for me and some of what hasn't . Just know that basically that is all the people on this site can help with. I have found just having people out there who knows what we are going through helps. So sorry you are going through this!
What are you taking to combat BMS?
I have been on Alpha Lopic Acid;4800 mg/ day: 4 x 600 mg in morning 4x600mg at night. Three year & No such side effects just relief !!! Research Dr. Roy Rogers--> dermatology research (real scientific research!)-->he and others find you can't take too much ALA. For me it works--just urine metal smells NBD. Good luck & Prayers for you.
Gracephys, about 4 years I had brain surgery for my extreme BMS and the nuersurgen severed my Glossophanygeal and a portion of my Vagus nerve. While the surgery was about 80% successful it left me unable to swallow anything except fluids and that included my medicine. He brought in a speech therapist that had to teach me to use by tongue to push the food back. I drank protine drinks and doc precribed all my medicine in liquid form. It took awhile for me to relearn how to use my tongue but it finally worked. And like you I lost a lot of weight. What does your doctor say?
I have never had that symptom! You may have something else going on their. I would go back to my Doctor! I take Pilocarpine HCL 5 mg tablet every 3 hours to give me some saliva. It works better in the morning when my stomach is empty. I chew gum also and use biotene products to help with the dryness of my mouth and tongue
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