... on BMS on the webb\b. I typed a lengthy introduction, which I can't find anywhere, so I may not have a grip of how this site works. I have most of the symptons that are listed here, I have acid reflux, I have tried a very long list of drugs including Lyrica and clonazepam (currently) none of which are very effective. I have seen more dentists and doctors than my budget will allow. I have been suffering with this for three years. My best remedy is a drug store bought mouth guard, chewing gum (Dessert delight strawberry shortcake), sucking on ice, eating and taking pain pills. There has to be a better way to solve this problem. Does anyone know of doctors or universities who might be doing research in this area?
OMG!!! IM NOT IMAGINING THIS!!! THERE ARE OTHERS OUT THERE!! OK, this is amazing. What makes this go away? Why did this start? So many questions, I've got to start going thru these questions and answers... Im not alone... awesome. By the way, it was suggested it "could be" a vitamin B deficiency. I guess I'll find out now, hopefully
I've given up on doctors. After 4 years and 14 doctors I' ve found out more from the internet than any doctor. In the evening when it gets really bad I take hydrocodone and it dulls the pain a little. Then 30 minutes before bedtime I take 2 Xanax pills which help me go to sleep without laying there when all I can do is concentrate on the pain. Good luck and if you can find help let me know, By the way I spend a fortune on sugarless gum!
Hello! My name is Lynnette Haas. I have been suffering with burning mouth for 4 years. I am still seeking treatments, but this is a very frustrating and stressful condition to have on a day to day basis. It would be good to have folks to talk to who know what this condition is like. You can find me on facebook if you want to message me. Maybe we could help each other out! Just make sure you mention Burning Mouth Syndrome in your message so I know you are from this support group. Thanks for reading. Happy Holidays to everyone. :)
I have been suffering with BMS for over 20 years. The only thing that gives me relief is Clonazepam. It sure helps me coup with it. If I try to get off Clonazepam I notice it much more. So I stay on the clonazepam. If I didn't use this I would go crazy and so would my husband.
I suffered from BMS since 2009. Burning secretion and inflamation from the inside front of my mouth caused deep tongue ulcers, headaches and lost of voice volume. After GP doctor visits, two dentist,,various drug treatment, 2 oral surgeon biopsies--no cancer--and Allergist, a 2010 internet seach for a dermatology solution lead to very, very valid research by Dr. R. Rogers--his testing indicated Alpha Lipoic Acid helps with symptoms. And it did for me!!! I take 1200 mg in the morning and 1200 mg at night. The most reasonably priced is Swanson 600 mg and,so far, has been effecrtive. DR, ROGERS, THANK YOU!!! ALA seems to have no bad side effects except metallic smell to urine. His advice "use more of it until it works" has worked for me.
Also, I am testing Oolong tea for dematitis. It coats the inside of the BMS area and doe seem to help with finger dermatitis... still testing but looks promising.
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