... on BMS on the webb\b. I typed a lengthy introduction, which I can't find anywhere, so I may not have a grip of how this site works. I have most of the symptons that are listed here, I have acid reflux, I have tried a very long list of drugs including Lyrica and clonazepam (currently) none of which are very effective. I have seen more dentists and doctors than my budget will allow. I have been suffering with this for three years. My best remedy is a drug store bought mouth guard, chewing gum (Dessert delight strawberry shortcake), sucking on ice, eating and taking pain pills. There has to be a better way to solve this problem. Does anyone know of doctors or universities who might be doing research in this area?
OMG!!! IM NOT IMAGINING THIS!!! THERE ARE OTHERS OUT THERE!! OK, this is amazing. What makes this go away? Why did this start? So many questions, I've got to start going thru these questions and answers... Im not alone... awesome. By the way, it was suggested it "could be" a vitamin B deficiency. I guess I'll find out now, hopefully
I've given up on doctors. After 4 years and 14 doctors I' ve found out more from the internet than any doctor. In the evening when it gets really bad I take hydrocodone and it dulls the pain a little. Then 30 minutes before bedtime I take 2 Xanax pills which help me go to sleep without laying there when all I can do is concentrate on the pain. Good luck and if you can find help let me know, By the way I spend a fortune on sugarless gum!
Hello! My name is Lynnette Haas. I have been suffering with burning mouth for 4 years. I am still seeking treatments, but this is a very frustrating and stressful condition to have on a day to day basis. It would be good to have folks to talk to who know what this condition is like. You can find me on facebook if you want to message me. Maybe we could help each other out! Just make sure you mention Burning Mouth Syndrome in your message so I know you are from this support group. Thanks for reading. Happy Holidays to everyone. :)
I have been suffering with BMS for over 20 years. The only thing that gives me relief is Clonazepam. It sure helps me coup with it. If I try to get off Clonazepam I notice it much more. So I stay on the clonazepam. If I didn't use this I would go crazy and so would my husband.
I suffered from BMS since 2009. Burning secretion and inflamation from the inside front of my mouth caused deep tongue ulcers, headaches and lost of voice volume. After GP doctor visits, two dentist,,various drug treatment, 2 oral surgeon biopsies--no cancer--and Allergist, a 2010 internet seach for a dermatology solution lead to very, very valid research by Dr. R. Rogers--his testing indicated Alpha Lipoic Acid helps with symptoms. And it did for me!!! I take 1200 mg in the morning and 1200 mg at night. The most reasonably priced is Swanson 600 mg and,so far, has been effecrtive. DR, ROGERS, THANK YOU!!! ALA seems to have no bad side effects except metallic smell to urine. His advice "use more of it until it works" has worked for me.
Also, I am testing Oolong tea for dematitis. It coats the inside of the BMS area and doe seem to help with finger dermatitis... still testing but looks promising.
I’m glad I’m not alone. I have had burning mouth since Feb 2018 and by day end, I’m a nervous wreck! Being a breast cancer survivor I guess I’m so afraid. My dentist checked my mouth and mentioned using Lipioc acid which I did but didn’t help:(. Maybe not right dosage? My MD and Oncologist looked kinda annoyed and had never heard of it! You know how that felt!
I’m glad to be a part of this forum + hope we can come up with a cure! Best wishes to all
Hi and welcome. I also have been to many doctors, not any use in me seeing a dentist as with me it was a dentist who caused this. I had all my upper teeth pulled years ago and have had this ever since. My doctor and new dentist both say that it was most likely caused by nerve damage in the pulling of all the teeth at one time. No doctor seems to have any real idea what to do about the burning. Like you , I also suffer from gastric reflux and for some reason when the GR gets worse it seems like the burning does as well, although no one seems to be able to tell me why. I am currently on Gabapentin 100mg . I take 2 at bedtime, 2 in the morning and 2 in the afternoon. Took me quite awhile to build up to these doses, as at first it just made me so sleepy. I also take CBD ( hemp) spray, they both help, but nothing works for long, and nothing I have found is a permanent cure. Wish I could be more help. This site is not really helpful, but probably because no one has ANY ideas what to do for this. Seems like everyone already has tried all the same drugs and no one has has ANY luck.
Hi, I have had this condition for 7 years. Took me 5 years to find anyone with any real grasp of the condition. He is an oral specialist in Brisbane, Australia. He has written papers on it etc etc. His name is Dr Neil Savage. He has prescribed clonozopan for me - 5 mg taken per day (2.5mg morning and night). I have been taking it for about 20 months and SLOWLY - extremely slowly- I am having some success. I would go as far as to say I am 50% better than when I started.
Dr Savage assures me that given time the condition will go away - I just have to persist with the meds. Anyway, I am persisting and I think I am getting better.
My BMS flares up more if I am stressed in any way - does anyone else notice this??
Hi hakins6. The same has happened to me I type in questions and respond to questions but am not sure if they have gone thru. It says you actually posted this on 5 Nov 2011 then updated it Sept 2018.
It is a helpful forum once you get you to the way it works. Amitriptyline is the only medication that
has helped me. I have taken between 4/5 tablets of 2mg day, never more, sometimes less, it depends on my BMS each day - BMS can be so powerful and very painful. It took a few weeks to work but the amitriptyline helped calm the symptons. I also get a very very dry mouth at night when I sleep, for this I have found the product Xylimelts, a small tablet which adheres to your gum/tooth and it lasts for a good few hours and gives you the moisture needed to help me sleep or I am awake on and off thr the night, even water does not really help. I call it my cotton wool mouth and these tablets are well recommended plus for me Amitriptyline.
Nobody, Doctors or anyone that I know or on this site have found the answer or really know what BMS is and how is starts and how long it lasts - I have asked the same question but no answers. Whenit is in full swing, it is relentless. I also chew on the hottest chewing gum I can find which helps for a short while. I hope you receive this and I hope you find something that works - but do try amitriptyline, you must give it a fair bit of time, a couple of weeks to get into your system.
Best wishes and good luck. June
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