I have been to five different types of doctors. A few agree I have burning mouth. But it is because there is no other explanation they can find for the burning and swelling in my mouth. I've had this for 8 months now. A swelling and burning inside my bottom and top lip. Burning all over my mouth that moves around throughout the day with no visible redness or swelling. When I wake in the morning it feels great and gets worse throughout the day. Does this sound typical to those of you that have Burning Mouth Syndrome? I am taking Gabapentin 300mg per day. I don't think its helping but I'm going to keep taking it for a while.
I also have Burning Mouth Syndrome (BMS)..It started a few years ago and I have the same type of pain you are describing. It does get worse as the day goes on. A horrible condition!!! It is neuropathic nerve pain. It did go away for a few months at one time but has now returned. It changes your whole life!!! I take a powdered aspirin everyday at 6pm just to try to ease the burning. My grandmother had facial neuropathic nerve pain but not BMS. I also have tingling and itching around my nose and mouth at times. Please keep me updated on how your meds are working for you. Know that you are not alone! Each day is a struggle. I also take a small dose of xanax for my anxiety and it also calms it down a bit.
I also have burning mouth syndrome. I had a tooth extracted July 21 and on July 24 could hardly talk. I have been back several times to the oral surgeon, my own dentist, my doctor and the emergency room. Apparently there is no cure for this. I take 5 gabapentin 100mg pills a day - 3 are 15 minutes apart before bwdtime. I also started taking alpha lipocic acid pills (2 hald an hour before a meal) 6 a day. I got these from Costco.ca. They seem to give me some relief but leave a metal taste in my mouth. No one knows how much this hurts and that you are in constant pain all day. No one has ever heard of it, except the dentists. Glad I found this site so I can see how others are handling this.
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