I started having pain in my knees 3+ months ago. I had trouble getting up and down from my chair and in and out of the car. Then I started having pain in my hands, particularly my thumbs. My thumb joints click and are stiff. Now I have excruciating pain in my arms, shoulders and between my shoulder blades. My range of motion is decreasing and the weakness is increasing. I am in pain constantly. It is debilitating. Ibuprofen and Tramadol helped for a while, now not as much. Gabapentin and Lyrica made is much, much worse. After taking Lyrica I could not get the covers off me to get out of bed. Can't sleep because of agonizing pain in my shoulders that feels like it is boring through my bones. Also have a weird pain in my right heel only when I lie down. Often feel like my right knee is giving out. My ears started hurting a few days ago and last night I started feeling like I was having difficulty breathing. This morning I had a weird feeling when I swallowed, like everything had slowed down. I do have Pulmonary Hypertension (diag 9/18/14) and Chronic Kidney Disease (diag 2013). Blood tests show no inflammation or autoimmune stuff. My doctor does not know what is causing the pain. I need help with what to do next to get this figured out so I'm not in pain constantly. I cry myself to sleep some nights because I hurt so bad. Anyone else gone though something like this or have any idea what this might be?
Body wide pain 3+ mos. Lyrica & Gabap make it much worse. No inflammation. What is causing my pain?
- 1 Mar 2015 by internettie
- 5 Mar 2015
- lyrica, pain, fibromyalgia, knee, inflammation
Added 1 Mar 2015:
I did take the antibiotic Levaquin back in April for 10 days. I had to stop taking it because of tendon pain. I have not taken it since then.
Added 3 Mar 2015:
I have an appointment on 3/5/2015 for a physical therapy evaluation. This PT treated me back in 11/2013 through 2/2014.
I have an appointment on 3/6/2015 for a rheumatology evaluation (autoimmune issues only; they do not deal with fibromyalgia).
I have an appointment on 3/11/2015 for a physical medicine evaluation. This is the doctor who used to do my steroid injections for SI joint pain.
And this developed after the levaquin? I'd have to wonder about that. Have they tested you for lymes disease? Have you seen a rheumatologist? Much of it is like the pain I have with fibromyalgia. Is the pain between your shoulder blades a burning pain? There are so many chronic pain problems that don't show on lab work. A pain doc may be able to help you while you seek a diagnosis.
Just a thought.. maybe it's time to have your dr do more lab work if you haven't done any recently to check your kidney and liver enzymes (CPK's) to double check for an autoimmune disease or neuropathy. Lab work wont show neuropathy, but an EMG, Nerve conduction test will. I have an autoimmune disease with neuropathy and the pain is excruciating 24/7 with not even a minute break. It causes severe weakness and pain all over even in my knees. I hope you feel better soon as living with chronic pain is absolutely horrible.
Have you been on any narcotic pain meds? Have you had an MRI on your spine lately? Seen a rheumy? I have fibro and severe osteoarthritis and do get help from pain meds and sleep medication. If I didn't have these meds I wouldn't be able to function. Good luck and hope you get some answers and feel better soon.
Sorry to hear that you're experiencing so much nerve pain in so many places. Have you been to a neurologist yet, or are you working only with your GP? The reason I ask is that I have a lot of problems with my lumbar spine which has created bilateral pain virtually everywhere from the waist down. But some of your pain is in the upper part of the body so it could be some type of peripheral neuropathy which can affect some or many of your peripheral nerves. You probably already know this but the upper spine and the brain make up your central nervous system while the peripheral nerves comprise all other nerves. There are a number of types of peripheral neuropathy and each type affects the body differently. A neurologist can do some preliminary testing in his office to initially determine whether you may have this disorder. If it looks like you do, s/he would likely send you to one or more hospitals for additional testing.
I have the hereditary type and although it adds to my back related nerve pain, primarily in my limbs,I think whatever you have, based on your description, could be something else. Like you, I have been thru many different scripts trying to find some relief and none were successful except a high dose of opiates. But opiates have drawbacks like dependency, lack of efficacy after a time, requiring a switch to another opiate or multiple strong drugs. Sorry I've gone on so long, but your symptoms are so varied, IMHO, you need a nerve expert which is why I'd start with a neurologist. Good luck with whatever you decide to do.
I forgot to mention on my earlier post that I took Lyrica 100mg at night to help with sleep and pain. I had to quit when my insurance changed (too, expensive) so I was given Neurontin 400mg @bedtime. The Neurontin made me feel like I was drunk after taking it and hungover in the morning. I couldn't take it but the Lyrica didn't bother me. It's a long and tedious process to find the right combo of meds. I'm also taking an anti-depressant and anxiety med.
- Lyrica Information for Consumers
- Lyrica Information for Healthcare Professionals (includes dosage details)
- Side Effects of Lyrica (detailed)
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