Since the onset of BMS my life has forever been changed. 23+ years ago. I have had exploratory surgery twice. I have seen every kind of Dr. Dentist in the book. After several years of trying and begging for help I gave up going to seek help and be made to.feel like I was crazy. It seems with every bout it last longer and worse. I am to the point of.it being unbearable. Can anyone suggest a Dr or Dentist or anything that.might help me find answers.
I really wish I could help. I have never heard of this syndrome in my life, until I got on this site. I am no stranger to chronic pain, but I cannot imagine what you are going through. Have you looked at sites for the Mayo clinic? Or John Hopkins? or the like? You can get on either site and really start exploring, until you can find a professional , make appts. I saw they could even help you financially. I am so sorry again, wish I had better answers.
I to am a 24 yr. Sufferer,I have been to all the best hospitals in Boston,I had a student working on my teeth 23 yrs ago.Unfortunatly he damaged my nerve.My pain has worsened.I have been on more medication,I've lost track,I an currently getting nerve block shots.I also have trigeminal neuralgia.Talk about bad luck,I have a dark cloud over me..BM,S wasn't enough.i have to deal with both.The shots help my nerve,but not bms.
Someday or most days i want to end my life.But I have so much to live for,I just don't know how to live,I have had acupuncture.with 3 different people.I have gone to healing priests.nothing works.I am on clonazapam,cymbalta.oxycodine.and I still suffer.morning til night.I asked a specialists to numb my lounge permanently, he said i would tire of the numbness.and could possibly bite lounge off and face might sag.Have you gone to support groups.?I will be going for the first time at pain clinic.Its only for people like us,who suffer from unbearable pain.I know without a therapist and a psychiatrist,its the only way you can cope with this condition.I feel for you,and understand your pain.I have been hoping i could find someone who could relate to my pain,no one understands.Please get back to me,its helpful for both of us..
First... let me say how sorry I am to read this. I suffered with BMS Horror for 14 years.
About 3 months ago, searching on the internet like I have hundreds of times... I found a blog from a wonderful doctor who has dealt with BMS.
She said... the key to this suffering is an exaggerated version of herpes simplex. Not the sexually transmitted kind.
A germ that lands in your mouth.
If all the hundreds of doctors I'd seen over the years had simply done an oral swab... I would have learned this and been given Valtrex -- Valacyclovir... 1 gram - 3 times per day for a month.
The change of pain happened within A FEW DAYS.
She suggested I go to 2 Mg per day for a few weeks... then 1 mg per day.
This has HELPED ME MORE THAN I COULD EVER EXPLAIN IN WORDS.
I GOT MY LIFE BACK AGAIN.
I pray this works for you, too.
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