... currently have a fever x14 days, every part of my body hurts, and have absolutely no energy. Has anyone had the same experience of feeling worse before they felt better?
Yep. Your totally not alone. It takes the right combo of drugs to get to feeling better. I've had 36 Benlysta infusions and take a few other immunosuppressants. It took almost 5 years to find the correct combo for me. I still run daily low grade fevers and get tired very easily.
Hang in there and I hope the Benlysta works for you.
I'm about to have my 3rd Infusion in two weeks. Have had no fever however the first infusion I had diarrhea I was aching and like you I had no energies and I was tired by the time I had the 2nd infusion I was tired but not as much. I'm still aching I do have some throat pain too. I am currently on 800mg of ibuprofen. That is my pain management for now but I believe that's going to be changed. I will keep you posted.
- Benlysta Information for Consumers
- Benlysta Information for Healthcare Professionals (includes dosage details)
- Side Effects of Benlysta (detailed)
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