... so, did you have voice or swallow issues before that? Also, did you suffer severe muscle weakness? I have been battling what we thought was a neuro muscular disorder when I got a certified letter stating that my gastro doc could not reach me and I had to make an appointment due to a pre cancerous condition that was found on my upper GI that was done in 2010. When I called the office they acted like I was stupid and said I have Barret's esophagus and that is a pre cancerous condition. This was not ever discussed with me. I was told to take omaprazole for 2 months and nothing was ever mentioned again. Now, here I sit, horrible weakness, swallowing problems and voice issues. Doctors thought I had myasthenia gravis, now they think I have lambert eaton myasthenic syndrome given I was not treated properly with meds and survailed for the Barret's esophagus I did not know was a pre cancer condition. Cant have the upper GI until next week and this whole thing is very upsetting. Wondering if anyone else had issues similiar. Also, it did state on the paper I brought home in 2010 Barrets esophagus. I did not know it was something bad. I was never told what it was so I figured it was fine.
Unfortunately, yes barretts esophagus is cancer, early signs are just as you described. If any help a family mamber has barretts esophagus and is doing just fine, he has had to have several surgeries done to pull the tissue back up over the esophagus but is doing well after 20 years.
I guess if I had a doctor that diagnosed my Barretts Esophagus and didn't prescribe medication and follow-up's on a regular basis I would be very upset. I too had Barretts Esophagus and over 10 years deteriorated to esophageal cancer requiring the surgical removal of the esophagus. Fortunately they were able to perform the THE surgery which uses the stomach as the esophagus. It was quite an ordeal, requiring being kept in Intensive Care unit for 10 days. But I was lucky, in that the surgery was a success, and the recovery was ok. I am able to eat normally, no feeding tubes, I consider that lucky! There are other problems not described or advised by either the surgeon or staff that one must deal with, but given the alternatives and the mortality rate of esophageal cancer, simply being on this side of the, well, I am so happy to be alive! I hope you have the same success!
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