... this past January on the L4 L5 area. Since the surgery the pain in my leg and hip is pretty much gone but the pain in my back had only gotten worse!! The T11 T12 has always been the worst area but my surgeon told me that if he fused the lower area than the middle should improve and it has only gotten sooo much worse. Today I had to go to a pain doc and he wants to start all over with the injections. I also have been on Morphine extended release 2 times a day along with percocet 10/325 4 times a day. The pain is still getting worse, I felt like today this new doctor looked at me as if I am "seeking" when I tried to talk to him about changing my meds because I have been on the same dose for almost a year now. He did change it to the MS Contin which I thought was the same stuff that I have been taking? I feel like there is no hope left anymore, I have two small children and a very supportive husband that I love dearly and I want to be healthy for them and stop hurting everyday of my life. What should I do? I need to talk with others that have the same problems as me so I dont feel so alone. I am afraid that this may be the way my life will always be and I just cant go on like this too much longer. I am desperate for help
I can feel your pain. I too suffer from chronic back pain. I also have osteoarthritis and various other issues. My suggestion is to find a good doctor that understands this kind of pain. If you have stuck with the same one for over a year, you should have a good relationship. When I first started this roller coaster it was 1997. I have had two surgerys on L4 and L5. They first put titanium rods in. That never fused. In 1999 I had more hardware installed, plate and pins. That didn't fuse. I was and still am a smoker. I was told that if I continued to smoke that it would take a long time to heal. Well, I did quit smoking for a couple of years and I think that made a little bit of a difference. I had the injections too, went to various pain doctors after they told me they could not help me anymore - I went back to my regular doctor whom is a D.O.
He has put me on every pain medicine I can think of. What finally worked for me is methadone. I was worried at first because of the stereo type associated with methadone. I am sure you know what I am talking about. But, it has been the best fit for me. For some reason, I want to cut down on my dosage or even see if I can get off of it. Its been five years and I am 54yrs old. But, I am also concerned that my back pain will return and I refuse to go through that pain all over again. I wish you luck. And remember I am only here for support this is my story and I am not a doctor so I cannont tell you what to do. I do care so much for folks that suffer with chronic pain. Hang in there...
Hi Baby Doll,
When i read your Story I knew i had to respond, I felt Like I was reading my own story. I was 33 years old when I had my first and only back surgery (discectomy L2+3) that left me disabled the rest of my life and on pain meds. The pain got much worse after the surgery much in the same way you describe. I too have been on different meds for pain and I want to Point out.. Kimmie made a great point about methadone and I too support that. I am on Methadone for pain and have been for the last 2 1/2 Years. It was the best move I ever made Pain wise. I do take Roxicodone for break through pain but everyone is different and im not on a very high dose of Methadone (60mg).
To give you some back round about increases I have needed while on this drug> I was on it for 16 Months before I needed an increase from 50-60mg , Now another 16 Months have passed (or so) and I am only now considering needing another 10mg increase. It does help so much better than MS contin , Morphine, Percocet, and Oxycontin, I know, as I have used all these drugs. I am 40 years old now so i been dealing with this for about 6 years ( I was 33 at time of surgery 1 week shy of 34). Pain is very difficult to live with for anyone especially being so young. Its hard on you, Your daily life and Your family life and what alot of ppl never mention is the financial aspect of it. It ruined me financially!. Luckily i too have a wonmderful husband is more tha n supportive, But i watch him work 8-5 Daily then again from 2am til 6 am ( 7 days a week) to make up for what i lost. I am on disability but that dont compair to an income. If you are not i urge you to apply now because it can take sometimes Years to get on and get an Attorney. Above all.. I want to say.. I understand all to well what its like to live like that. Am I pain free? No!, I probably never will be and odds are You probably won't be either but it can be managed. If you have a Dr that's making you feel that way.. GET A BETTER DR! Under no circumstances should you have to feel like that, yopu have enough to deal with let alone stress from a Dr thats suppose to be helping you. By the way MS contin is basically the same as Morphine. The best thing you can do for yourself.. Is remain positive. I know its hard, Its very very hard. Move around and take a walk . Exercising is very important too and you will be surprised how even doing little things will help you feel better. I am here if you need to talk. Having someone who understand and has been there can help too, Just to talk and take a load off ya know. Don't seek more surgeries either. I was told by one of the finest Dr's in Boston that every back surgery you get, your Odds decrease of a good outcome. I saw him to seek a Fusion and he declined to do it for several reasons. I accepted that and never did seek another Dr because sometimes we need to just accept it But grab it by the horns and make the best of a bad situation by controlling it and thats exactly what i did. Believe it or not.. we can do more for ourselves than we relize. I have bad days just like anyone else and I have suffered thru depression because of this.. but I then finally decided I wont live like that anymore. Ask about methadone, you may be surprised how much better you may feel. let me know how things are going and anytime you want to talk i am here for you no matter what is it about. Take Care and God Bless.. Snakey (Savannah)
As Kimmie said Hemorrhage is something you might look into or Subutex. Both items have not the FDA approval yet for pain, but many doctors give it to the patient to lower the pain level. Now Subutex takes a Physician that has a special license foor the issuance of this medication. You might try bio-feedback.
Go to a real Pain Management physician. Not a physician that claims they are a pain management physician. Check to see if they are really certified. If you can not find out. Ask the physician.
Maybe you should consider a second opinion for surgery-wait let me tell you about my experience I had a fusion but it was Laprascopic no rods done at Arkansas Spine Center I'm sure they do it this way all over the country check it out!! They implanted some bone and some stuff to make me grow my own bone and I am almost pain free rarely ever take any med for back pain. Still have alot of numbness.
Sorry to hear of all the pain you are so young I had a spinal fusion L5-S1 the surgery was a failed surgery The pain in my legs and hip never improved I just had a spinal cord stimulator implanted It took the edge off and with the meds oxycontin&Lortab plus the flector patches it keeps the pain in check. I am having the faucet injections for the cervical spine.they have helped.If the meds are not helping tell your doc to up the dose.hang in there many people are in the same situation as we are.good luck.
I love this site... new here but already learning so much... have had back problems for years, sciatica, narrowing of the spinal cord which squeezes my sciatic nerve, knees are bad... bone rubbing on bone.. L4 & L5 are compressed... just on tylenol 3 and my doctor just prescribed Lyrica for the pain, we have Blue Cross but this drug is not covered... $235.00/month, plus $130/week for physiotherapy... have to cut out physio but I keep exercising as much as possible and love aquatics... waiting to see a back surgeon, but am now thinking back surgery is not a good idea, from what I read here... I feel so bad for your pain, and pray you will get some real help soon... chronic pain is really life altering...
Hi , My name is Martin, I was working in a foundry about two and one half yrs ago, My l5-s1 was crushed with lL3-L5 bludged went thru fusion, with metal and screws, but the fusion failed, real serious pain with nerve pain down the leg to the foot, Ive been unable to function sence Sept,08, I also have 2 kids 12-13yrs old, Im on Norco- Norflex and ellivil, I never thought this could be me! But here I am. You are not Alone there are many like us! I can only pray for you which I will do every day! For what its worth try the nerve block injections maybe they will help.Peace!!
Babydoll, At age 65 I am not sure if my answer will help, but noteing you seem.to be experiencing depression, I felt I should. I started with herniated disc surgery in 1980, fusion in 82, did pretty well for awhile, but as I aged I ended up with stenosis, arthritis, osteoporosis, 3 more herniated discs, degenerate disc disease and a lot of pain. Depression became a part of my life, so finally I did seek help for that. It's not uncommon to suffer depression with chronic pain. You are not alone, but please let your Doctor know about your depression. You can find relief, but please seek it out. If I can help in anyway let me know. Just talking can help, I know. Best wishes LeaBlue
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