I have MCTD and since moving to a different state, I've had difficulties finding good doctors. Up until I moved, my disease was manageable. Now, I feel like I'm on a downward slope to demise. In the past year I've had lungs filled with fluid, collapsed lungs, chest tubes, severe edema, high CPK & c-reactive protein levels, and I could go on. My fear is that in the past 1.5 years, I've only had TWO blood tests done..and all they checked were CPK and c-reactive levels. No blood counts, no liver or kidney panels. My old Dr did these every 3 months. Any suggestions? Honestly, I'm not even sure this is the MCTD causing all of these new symptoms.