I went to the cancer clinic 2day. Having my face and bone cut out is the only sure way to get rid of it. If any BCC has attached itself to bone, then it can spread from that. The cancers would just run through my system, attaching their selves to hair follicles, and start burying their selves-hunting for bone to eat through. Is having an artificial face painful afterwards? How much physical therapy is needed to eat-how long does it take to get flapping lips? The doctor says that it's good that my lymph glands aren't affected-that's in my favor with the tumor board. The doctor told me that I'd probably lose my right eye-I told him that I shoot with my left eye.
Hey dear Lady, you are really a trouper, you "shoot with your left eye"!?
I'm sure that any plastic surgeon can answer these questions, about prosthetics. Have you been sent to a Plastic Surgeon yet? If not, don't worry too much, meyati. Get your doctor to refer you to The Best Plastic Surgeon in your part of the country!! They can do miracles!
Hi, I mostly grew up in Southern California, mostly--- went hunting in the Mojave and Cochilla Deserts. I've also spent time hunting and fishing in Nevada, Iowa, Texas, and Georgia. I live in New Mexico- It's not just the sun, but I've mostly spent 3/4 of my life in high altitude.
HAVE YOU SEEN AMERICAN HOGGERS ON A&E? THE CAMPBELL FAMILY- I DRESSED EXACTLY LIKE THE YOUNG LADIES: TANK-TOP, SPURS, LEVIS, CHAPS, REVOLVER, BASEBALL CAP, SHARP TOED BOOTS, AND GLOVES IN MY BACK POCKET- THEN YOU ADD SURFING-SCUBA AND FREE DIVING, LOTS OF FISHING WITH WATER GLARE.
I spent 25 years dressed like that in the summer where it was 105 to a 125 in the summer -way over a mile high. Winter blizzards- high winds- god knows that I loved it. I would have been OK if the doctors had taken the mother ship off before it spread all over-i wouldn't have been so bad off, if the doctors had taken that 'zit' off before it began dripping cancer into the pores in my skin. I should have parked outside an ER-sat in my truck with a good mirror and sharp Buck knife-cut it out and went into the ER so maybe they could figure out what to do-like sew it up and look at the zit-they probably wouldn't think that I was any crazier than some already thought that I already was.
Hi Meyati, I haven't personally seen this done to anyone, but did see a television show one time where they replaced face parts (the entire face) with an artificial face, & it looked so real it was unbelievable! It can be done & very successfully.They made snaps under the skin that is left, & the new parts just snap on. It was really neat. the guy had NO face except a forehead & neck. They made a nose, chin, mouth, & cheeks. It can be done so don't give up hope my friend... Mary
Hi Meyati. Glad your spunk is till there. Keeps ya going doesn't it? God to hear they numbed parts to reduce pain. Numb is better than severe mind boggling pain.
I know that "why" is the hardest question we ask. Sometimes I marvel at all the stuff that happens to people. In my belief system it is karma. For others the grace of god. Yet for some others it seems like a curse. No such thing as fate, or we wouldnt be able to make choices. One thing for sure, there is no understandable answer for one person to suffer this way and not another. I decided when I was diagnosed that if they studied me, and many doctors learned of a rare condition, it could benefit others in the future.
A surprising thing happened yesterday. My husband was working and the head physician who performed our daughters surgery came in. He still had every detail of that surgery of almost tweny years ago. He considers it one of the miracles of his very prestigious career as he was the neonatal surgeon for this part of the state... Never done before, team flown in from Japan, Europe. They learned so much from that surgery. Constantly shifting the game plan to remove a sarcoma that was everywhere. Removing tissues and hoping the vertebrae were not invaded. A good doctor never forgets and they really care about their patients. I do hope that is now true for you. Keep going lady. You can still have twenty years or more ahead of you. Plenty of time to heal and learn new ways.
PT and OT ought to be spending time with you. They have the tricks of the trade. Your pharmacist, you did find a good one by now I hope, can tell you things to do. Local medical supply store knows things to use. Home nurse can check on you for a while and research these things. Medicare pays for that. A lot of equipment too if there is something for that.
I was judged by people because of my voice shaking so bad. Accused of crying or angry. I always informed them I have a disease and told them not to jump to conclusions. Awkward? Sure but that stops me no more than you, I think. Their problem. And I love to talk to supervisors as it adds spice to the day. I tell you this because I do relate to parts of your problem. As for the radical surgery, I think you are very brave. Keep us posted. Write me anytime. Love to you, Karen
Nobody numbed any thing-it's just how my face is reacting to part of it being taken out. I haven't had the actual surgery yet-I'm just missing part of my nose-lip and the area in between. That's quite different from my eye down to my chin being cut out-including the bone. Sherbet has been my only pain killer. I don't know if this is good-or they think that I'm lying about it. Right now, my appointments are being made for a presentation to the tumor board, which is the 18th. Sounds funny- but if I do get the transplant, I'm wondering if I'll sneeze. How it'll feel to sleep on it, if I can still sleep with my skank arse coonhounds, will I be able to move both sides of my face. The doctors are checking on my physical therapy status-like was I a good patient-did I improve-etc. Was I a whiner-no-was I a constant whiner-if I didn't whine-then I certainly wasn't a constant whiner. Did I show up-did I show up on time.
I think that they think that I'm a good candidate. I had that MRI that shows my kidneys, heart, liver is strong-and I have that auxiliary spleen which means that my red blood cells carry more oxygen than all of you poor people in the 99%. This is one percent that I don't mind being in. I've been scrubbing down the pantry-the painter didn't try to paint around the floor and hot water heater so I'm doing that. It started off weather proofing the window and replacing the clothes dryer vent pipe. Time to eat- Sloppy Joe time--
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