Are there status epilepticus support groups for pediatric patients?
- 5 Feb 2011 by jballe01
- 10 Feb 2011
- statuss, status epilepticus
My two year old daughter has been SE since birth.
I'm interested in connecting with a similar group.
What part of United States do you live in?
I live in the north Dallas area. Thanks for asking. Any help is appreciated.
One helpful site would be: www.idea-league.org .
Does she have a diagnosis yet? If not, has she been tested for the SCN1A gene? Many of these kids are in SE constantly before diagnosis.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 16 Sep 2014 • 1 answer
Posted 18 Jun 2016 • 1 answer
Posted 28 Dec 2016 • 0 answers
Posted 12 Feb 2017 • 1 answer
Posted 8 May 2017 • 0 answers