Are there status epilepticus support groups for pediatric patients?
- 5 Feb 2011 by jballe01
- 10 Feb 2011
- statuss, status epilepticus
My two year old daughter has been SE since birth.
I'm interested in connecting with a similar group.
What part of United States do you live in?
I live in the north Dallas area. Thanks for asking. Any help is appreciated.
One helpful site would be: www.idea-league.org .
Does she have a diagnosis yet? If not, has she been tested for the SCN1A gene? Many of these kids are in SE constantly before diagnosis.
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