... doctors. Diagnosed 2 years ago, with major symptoms for at minimum 2 years before that. Had loads of phlebotomy at first, slowed, but then very anemic (3%)... so January of 2012, new dr. started iron infusions, yippee, I felt noticably better for almost three weeks... but must have phlebotomies every two weeks... (infusions every two months). Wish there was a stable time that lasted. Now doctor is really pushing the Hydrea... there is so little review on the drug and what I find is not positive... worries me. I was exposed to vehicle/diesel exhaust for 10 years working for the County in a scalehouse at a transfer station (dump). Now my feet are turning blue, have a lot of other symptoms. New doc says not related to PV... REALLY??? Have a hard time believing that since was very healthy up to starting that job... take a 81 mg aspirin a day and Zyrtek for the itching... Concerta to help my brain work enough to function... any and all input would be welcomed!!! I also see one posting by a person and then nothing... are these people still around with PV? How long are we living? What personal drug review can you share... thanks so much all, Lori
It looks like the use of Hydrea has to be a case of the benefits outweighing the risks. PV is more common in men then women. You don't live near the hard coal mining area of PA do you? I'm send a web site that has info on PV with pics of the hands of feet of people with it. en.wikipedia.org/wiki/Polycythemia_vera#Epidemiology
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