I am a 57 year old male, looking for other people that suffer from this disease, to chat with or email. I'm going in for surgery this Monday to have a pain-pump implant. I just finished the trail steps. Well, I could go on and on about this, but I won't. I don't even know if anyone will read this and write back. I will look forward to any type of correspondence.
I also have this problem, however mine was caused by idiopathic guillian' Barre' syndrom I had no periphial lining on my nerves. You may want to check to see if you happen to have cidp,millers fishers syndrome, and possibly MS
I know I feel as I am either have my fingers in a light socket or else my body goes into a burning sensation which I am in horrid pain. noone can touch me.
I will add you to my friends list please add me
have a pain free day
Hi! I am a 48 yr old female suffering from idiopathic progressive polyneuropathy. I haven't gotten to the pain pump stage yet... so sorry to hear that. Mine has progressed significantly in the last 6 months. This time last year I was able to walk, but in a lot of pain. I was only taking handfuls of motrin to control it, but that ended me up in the hospital with 3 bleeding ulcers.
I am so frustrated daily with how hard each tiny task is: putting on shoes, pulling my pants up after using the bathroom, I'm sure you know.
Hope your surgery went well. I'm here to talk.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 11 Oct 2009 • 2 answers
Posted 28 Oct 2009 • 8 answers
Posted 17 Oct 2010 • 1 answer
Posted 25 Jan 2014 • 3 answers
Posted 27 Jan 2014 • 2 answers