I'm genotype 1A, treatment experienced, with compensated cirrhosis. My health provider is the Veterans Administration. They won't pay for Harvoni as it turns out, but I will be starting the Viekira with Ribavirin in a couple weeks. I'm concerned about side effects as I'm 65 years old. Anybody tried it?
I'm genotype 1A & have taken the 12 week Viekira Pak with Ribavirin... Here is where I am at & would like to touch base with someone that has gone a bit further in the treatments.. Now, I am NOT in any Way discouraging anyone because I am now HEP C Free. It did work but I am still healing from this. It was hard on my body & though I have head from some it is a Fantastic.. for me, I had some issues.. Now, I can say at this moment that it is a small price for life & getting rid of this terrible disease but I cant say anything further as I do not know what is happening from here on out & hope to find some answers.. I just want to pick up pieces & re-build.. I DID expect to need to do something of the nature but to not really know where to start is my problem & I need to know what is normal with this & what is not.. I am sure it is different for everyone..
Here is a Question & My "Place at this time" Copy & Paste from Other Q & A Posts up.. I will add it here too in search for answers & also in hopes to help another..
They told me VERY LITTLE when I began this.. Huge to all that is going through this.. YOU can do it.. Now what's next.. Hopefully we can figure this out.. Maybe together?
I have just stopped taking the Hep C Treatment with the V-Pak & Ribavirin 1200 Mg Day for 3 months. I am experiencing some strange side effects. Neuro? Maybe?
I have lost a lot of abilities to live my daily life. My ability to multi-talk, some of the words I type come out completely backwards. I still have crazy sweats that make me spell literally like "Lays" potato chips. My urine stinks, I am tired & feel like I cant get it together. I had some vision loss & a since of confusion / Lack of understanding. It also seems that things like my OCD & other similar issues have gotten WAY worse.
Please do not get me wrong. I am clear & free ( according to my blood work) from the virus & I am grateful but I am a bit scared as I thought some of these symptoms would stop. I have been off treatment now since OCT 17th.
I still at times have the chills, too. I feel like I just cant get 'with it'... I am a mother of 6. I have a ton of responsibility. I am really trying to enter back into everything slow & take baby steps but this is hard when I am a bit confused as to what I need to do to get myself back on top of my life.
I have very little info on how long this will last or if it is going to stay. I need some info & would be so happy if I can make contact with another to see what their effects after / Post medication was. How long? What were they? Am I normal?
I also experienced a very hard & high heart beat at 140 BPM resting. I would always have to excuse myself to get my heart rate to calm. I experienced a lot of confusion & the sweat from rest was like a slime. I felt like it " Glazed me" so to speak. I would stare at the shower & just freeze from it , not wanting to get in but feeling awful if I did not.
I would take my meds with about 30 ft grams of good fats, drink 2 qts. of water with every regimen & run to bed so fast... then Pray to fall asleep before it kicked in. If I did not I would feel my heart beating so fast that I would really have to pull deep to focus, breath & go to sleep.
I would fall asleep if I did not position my head in a way where it was harder to hear the blood rushing through the veins in my neck & head. After I woke after praying myself asleep at these times, I would be bruised from head to toe making it hurt to even be touched. my body ached from my blood rushing SO FAST.. I was so scary. With hardly anyone to talk to that understood & feeling so bad I did not even want to ask... really I just dealt with it.
My ant-anxieties, it would boot right out of my system even making 105 Clonopin a month NON detectable in my system. Crazy HUH?
Never less.. I would love to communicate with someone or help another, whatever it may be..
For me, I do need to ask.." What is going on with me?"... I am SO happy I am better but where am I at at this moment? I need to know I can get back to normal & if I lost more than vision, I need to know what & where to start my healing..
~ restless A
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