After staying 5 days at the hospital,monitered , the doc.put me on 500mcg of tykosin ( last 2 years I was on cardizem 240) . Now, after ,2 weeks on the med.I still feel tired ,short of breath and somehow scared.doctor insists that I stay on it.please give me your opinion.thanks
I don't know of anyone who has taken Tikosyn but the link below has a few reviews, which you may find useful.
I started Tikosyn in December and take 500ucg b.i.d. They monitored me closely in hospital during the first three days, did an electrocardioversion to bring me to Normal Sinus Rhythm and I have remained in NSR since then (blessed NSR). No side effects of significance. Watch my supplements: Magnesium, Potassium, Taurine, CoQ10 (Ubiquinol), etc. as suggested on www.afibbers.org and avoid triggers like caffeine, MSG, sodium, chocolate, etc. Have occasional attempts at aFib breakthrough but a tall glass or two of low sodium V8 loads Potassium rapidly and seems to make the aFib bogeyman go away in short order (under 30 minutes). I am back at work and am advised that if my aFib returns I am to be at the hospital in emerg within 12 hours for electrocardioversion back to NSR. Thus far no issues and it works well for me. Having said that, please understand that TIKOSYN is NOT for everyone. Some have reported substantial side effects.
I will remain on TIKOSYN for a year or more until my left atrium returns to normal size or at least under 50mm and then consider catheter ablation by a top electrophysiologist.
As a matter of interest, I am still feeling tired at times (my body adjusting to new circadium rhythm?) but have an abundance of energy and NO shortness of breath any longer. I can climb our scarlet ohara staircase to the second floor two steps at a time and not be out of breath at the top, whereas prior to NSR I had to sit on the top step to catch my breath or make it to the bedroom and take some oxygen from my oxygen concentrator. Monitoring my SpO2 at night it seems to remain at almost 100% even in REM sleep; a big improvement from before when I had aFib fulltime.
I would suggest your earnest consideration of catheter ablation, but if you are tolerating TIKOSYN, hang in there until you MUST have catheter ablation with no alternative. They are making great strides in the technology week to week. Start looking for a TOP cardiologist/EP NOW though. The waiting list may be long. You want one that will be hands on during the procedure and not simply supervising. And you want one that does hundreds of them annually.
Best of luck.
Hi - just joined this support group and am currently in hospital for the standard 3-day/6-dose Tikosyn initiation. I had persistent A-fib for past year and fortunately converted to NSR about 3 hrs after first 500 mcg dose. I'm now ready to get 5th dose and so far I'm still in NSR with no problems. Already feeling much better energy levels.
- Tikosyn Information for Consumers
- Tikosyn Information for Healthcare Professionals (includes dosage details)
- Side Effects of Tikosyn (detailed)
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