Hello nanashuck10 and a warm welcome to DC - I have not got HS but I have come across it a few times when I was an RN. Hopefully someone with the condition will respond to your question. HS ranges from mild to severe. It is not necessarily progressive. I am sorry to hear that you have this painful condition for which sadly there is no cure and can occur in families. It also requires constant management by a Dermatologist. Some of the lumps (abscess) either goes away on their own or ruptures and ooze pus. This lump may return time and time again and may become infected with bacteria, causing a secondary infection that will require antibiotics to treat it. New lumps appear in an area nearby if these are not controlled with medication; large lumps may form and spread developing sinus tracts which are narrow channels under the skin that open up at the skin surface and leak pus. HS can be difficult to manage.
The aim is to catch the disease in its early stages and prevent it getting worse. Therefore an early diagnosis is important. Treatment ranges from (In the early stages). Antibiotics for weeks or a few months depending on the severity of the disease; also anti-acne antibiotic creams may be used. You may be prescribed a steroid such as Prednisolone to reduce skin inflammation. Other treatments used are aimed at controlling some of the spots and lumps. Reducing secretions from the sweat glands to help control the lumps. Suppressing the immune system with medications in order to relieve systems can also be used. If medications does not control your symptoms and in severe cases surgery will be needed. One of which surgically removes the lump or freezing it off with liquid nitrogen. With all medications there are side effects and depending on the type of medication you require some of the potential side effects can be potent, thus your Dermatologist should explain your treatment plan well to you and its potential implications – Wishing you well and all the best.
I have been diagnosed in the last year but I've had for about 10 years but didn't know what it was. My doctor prescribed me Doxycycline that I take once a day. I have seen a large improvement with this. If I even miss one dose the boils swell back up and become painful. My doctor has also recommended hibiclens that is a really strong antibacterial liquid cleaner. I had already had some when my doctor recommended it because I was required to wash with it before a surgery. I also make sure I wear soft breathable underwear/clothes so not to aggravate the area.
Yes I have been treated with a treatment that didn’t work. I found a treatment of my own and have been free of Hidradenitis Suppurativa for two years now I take turmeric. After taking it for and making a paste of it and applying it to the area it cleared up. I take turmeric pills everyday and no more problems
I have also heard about the benefits of turmeric. I went into remission through hormone therapy. We made sure that I never got my period, because that's when I would most often have a flare. So I skip the placebo pills always. This occasionally (every year, year and a half) leads to unexpected light breakthrough bleeding that lasts two to four days, but it's tolerable. I had it for ten years before I was diagnosed, which seems to be the average among the world population. It took another eight years or so before we discovered the hormone therapy solution, and that was by accident. I just happened to be looking for a birth control pill where I would get my period every three months instead of once a month. Once we saw the hidradenitis going away, we took away the sugar pills, so I'm taking active hormone every day. Hope this helps someone! :) Meg
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