Nearly all the questions I have asked in the past have finally led to a diagnosis of Systemic Lupus. It's been working VERY slowly in my body over the course of 7 years or more with some isolated symptoms here and there, and now I have many of the classic symptoms and my blood work finally confirms it. Over the last two years, my platelets have been lower than usual, then within the last few months, discoid lesions, fatique, lower hemoglobin set in. I've been told that protein is being spilled into my urine, but otherwise my kidneys are functioning properly for the time being. My doctor may put me on Cellcept to avoid further damage. I've just started Plaquenil. I've done some research on Cellcept, but would like to know of others and their experience, particularly side effects. Thank you.
I have been on cellcept for about 2 years now due to kidney failure which ended up giving me a diagnosis of Lupus in full scale attack mode. I also was on plaquenil but went off it about a year ago. The amount of cellcept I was taking at first was 3000 mg a day which I have managed to reduce it to 750 mg a day with no real side effects to speak of. I go through periods of depression, headaches, and fatigue but the most cumbersome is the water retention and joint pain. I see a Naturalpath that helps me with most of these issues so I am able to work full time and have enough e edgy left over to exercise. I enjoy the sun (in moderation) and haven't had any really bad pro less with it except the cost. Haha. Anyway, please feel free to keep asking questions I'd be happy to help answer anything
Hi. Sorry to hear about your kidney issue. I, too, have started developing advanced kidney problems. I went to a Nephrologist and he explained that what you are experiencing is a high level 3 or even level 4 kidney disease. I feel for you.
If your insurance doesn't pay for the cellcept and you don't have much income, they will send it free or very reduced cost. Thought you should know. Of on Medicare you will need to use your Part D.
Be very careful with your diet as being on dialysis means a transplant may be a better solution. As you have protein in your urine, you are getting very close to dialysis. I suggest you read the info from the American Kidney Foundation to adjust your diet. It will help.
I have a different disease and am on prednisone and tacrolimus. The tac is killing the kidneys. So does the prednisone for nine years. Immuno suppressed. Just as you.
I too have been recently diagnosed with Lupus. I am on plaquenil and a Mayo Clinic doctor that diagnosed me put me on Cellcept. I did have some mild proteinuria, hematuria and slightly increased creatinine. Also had random other abnormal labs which supported and help lead the Mayo team to the SLE with Sjogrens overlap diagnoses. It causes bad n/v and diarrhea but it DOES WORK!!!
- CellCept Information for Consumers
- CellCept Information for Healthcare Professionals (includes dosage details)
- Side Effects of CellCept (detailed)
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