I am so done with this, I have had this horrific burning, gnawing deep intense constant pain in my chest for now 3 yrs... been on every drug u can imagine (gabapentin, amitryptline, nortriptyline, topomax, lyricia, cymbalta and the list goes on and on and on Ive had nerve blocks etc.. If anyone has had anything that has helped them I would love to hear from you,,, shine
I am so sorry to read of your suffering but your symptoms sound very similar to what I had going on in my right arm from elbow to third finger and to a lesser extent in my left arm and somewhat in my right foot and after taking lyrica at first and then after 6 months switching to gabapentin which I currently am still on for those and other symptoms (seizures) now I have stabilized with over 90 percent of those symptoms receded. I say it like that because those burning symptoms have not gone completely. But I can stand it now before it was just ah... bad. Maybe give gabapentin more time to stabilize your symptoms ? good luck to you...
I have been on the exact same road as you. I bet I can guess the rest of your meds list. The list of my side effects and withdrawal symptoms from these drugs would be a serious illness by itself. I pray you have found relief. For me, it was gabapentin, but it took quite a few adjustments to get it so it would work. It went from doing nothing to giving back my life. Gabapentin has a nonlinear dose-effect, so works different for every individual. Lyrica is linear and more predictable, but expensive. Lyrica works differently on gaba receptors than gabapentin, so is not quite the same. A particular dosage of gabapentin is only a guess to start with when trying gabapentin, then needs adjusted by the doc to find where it can work the best for that individual. Some think gabapentin has a stronger effect in low dosages than high dosages, at least for some people. That may be why some people on only 300mg have such extreme side effects compared to people on high dosages.
After being at all dosage levels, 3600mg per day finally gave me the most relief. Once again, gabapentin is nonlinear, so what works for me, probably won't work for you. Also, each person has to see which side effects they get. I got pneumonia frequently while on gabapentin that is a rare side effect, but was the lesser of two evils. At first, my doc thought the multiple pneumonis were caused because I was not taking deeps breaths due to the constant intense pain near the diaphragm, which could cause liquid to pool in the lower lobes and kickstart the pneumonia. Even with gabapentin, during my worst year, I would get regular steroid injections. I would get one at the trigger point near the outer side of the lung where horrible pain attacks would originate. I would get another at the same time next to my heart, which was the area of 24/7 pain, probably similar to yours. The first day after injections, I would hurt worse, but feel some relief after a couple days. It was far from total relief, but an improvement. This benefit would last about 4 weeks, which is short of the FDA time spacing, so would have to tough it out for a while. I would also get relief from the intensity of pain attacks by putting a salve/cream on the trigger point. Many pain mgmt docs put together their own version with multiple ingredients including capsicum. I did not find relief from lidocaine patches, so the cream worked as the topical portion of the multiprong approach for my situation. I think many people with PHN need a SSRI not as an anti-depressant, but to try to trick the brain's pain perception, then to stay on it to deal with the depression that comes with having PHN.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 8 Nov 2010 • 12 answers
Posted 27 Mar 2011 • 7 answers
Posted 3 May 2012 • 1 answer
Posted 7 Jul 2012 • 14 answers
Posted 7 Oct 2015 • 3 answers