I spent 3yrs mis diagnosed. I finally have a referral to a dermatologist. They now think pyoderma gangorysm (pg). The pain is the worst in the morning. It feels like its burning, from the inside out. I know this is a condition that is approx 1 I. 100,000/ so I pray I can find people to help talk about this. Iam breaking. So done. This is horrible. Effects whole life. :(