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Does anyone else have severe pain/burning in their feet at night with PD and did Hizentra help?

Responses (1)

HeadStarter 9 May 2012

I have just had a nerve block in lower lumbar spine to help deal with that issue plus ELAVIL 10mg tab at bedtime (or two, if needed). So far, both are working for that issue. I have had one week of no burning...

I do not know about Hizentra but letting you know what DID work for me. My nerve block was last week... my pm doctor told me the burning, pin prickly feelings were from damaged nerves in my lumbar spine (failed lamenectomy with hardware and stuff)

Good luck in finding what works for you...


kathyhanson 28 Feb 2013

Were you on other treatments before - chemo, thalidomide? Frequently, other treatments will cause neuropathy, or permanent nerve damage. It is seen most frequently in the hands, feet, legs, and can be quite uncomfortable. I have neuropathy in both legs from the knees down. There are meds that your doctor can try for the neuropathy. These meds are used alot for diabetes patients who develop neuropathy from their disease. Best advice is to talk to your doctor because it depends on the cause of the pain as to whether it can be treated with meds. I am also using Hizentra. Unless your leg pain is an inflammatory issue, I'm not sure if Hizentra will help it. Hizentra is used to boost the immune system for those of us with PID, hypogammaglobulinemia, or other immune deficiency. Best wishes to you in your struggle with this. I literally feel your pain!

sheilade 2 Mar 2013

I went to the doc last week. He calls the burning/pain in my feet, neuropathy but I am not diabetic. He is going to do a biopsy (from ankle area and from thigh) next month to determine the cause of it.

kathyhanson 9 Mar 2013

Neuropathy does not occur with only diabetic patients. I'm not diabetic either. Many other medications can cause neuropathy. The meds to treat neuropathy are the same for both diabetic and non-diabetic patients. My neuropathy was caused by thalidomide/chemo. My doctors never did a nerve biopsy -- they pretty much knew what it was because of the chemo. I don't know if you were on other meds before that could have caused neuropathy, so I would assume that the doctor is not certain that it is neuropathy. It could be another condition and he wants to be certain of his diagnosis -- thus the biopsy. Best wishes to you for good health. Kathy free discount card

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