My boyfriend knew I'd jump on this question. I absolutely despised every moment I was on Nucynta. I had horrible side effects from becoming tachcardic, which would bring on a severe panic attract, I lost balance, had difficulty word finding and forming sentences, also would nod at as this doc added it in when I was on too many other meds, I nodded out on the freeway, I hallucinated, and counted the minutes which felt like eons for the drug to wear off.
NUCYNTA is an SNRI which I don't respond well to, anything that acts on the central nervous system is out for me. The worst possible side effect is what is referred to as the Serotonin syndrome which may include mental-status changes (eg, agitation, hallucinations, coma), autonomic instability (eg, tachycardia, labile blood pressure, hyperthermia), neuromuscular aberrations (eg, hyperreflexia, incoordination) and/or gastrointestinal symptoms (eg, nausea, vomiting, diarrhea). I suffered from all these but made it through until I told my doctor who was fine with me stopping. Obviously as nodding out on a freeway is slightly dangerous as well as seeing a rattle snake under the sink (wasn't there).
But again I am so sensitive to this class of meds. If people experience relief without all the awful stuff I experienced its suppose to be a very good pain medicine. So that was my experience but I'm always in the 1% for whatever disastrous may happen but is highly unlikely, it happens to me!
Good luck and best wishes!
Hello articdoo, & welcome to the site. We have quite a few people on this site whom take nycynta. Some like it quite well, & others don't. Is fibromyalgia the only diagnosis for pain that you have?(and I ask that lightly as I know how painful it is) I have had it most of my life & several other very pain producing conditions for which I have to take pain meds. My personal view on just fibromyalgia is not to use narcotics for pain as they don't really help the pain of fibro that much. I take 30mg of oxcodone evey 4 to 6 hours for my back & bone pain which it does help or allow me to function to some degree, but it does not touch my fibromyalgia. When I am in a flare which is almost daily, I make my self do some stretching & walking (when I can walk). Pass by the temptation of hitting the couch for the day. It only makes it worse. As with any pain drug it has the potential of abuse or addiction.
If you don't have an addictive personality, you eventurally become tolerant of the dose, & have to have it increased every so often. Learning yoga moves helps me the most. It's more gentle stretching. You can get a CD and/or book on it from the local library. There are lots of sites on the internet that give out different things to try instead of opiate pain killers for fibromyalgia. One is DRDryland.com, whom is a doctor that only treats fibromyalgia. Go to his site, & you can download a free chapter of his book. He has had great success with food elimination diet. He also suggests it's a lack of dopomine that causes fibromyalgia. Good reading even if you don't agree. I worked with 2 failed back surgeries & fibromyalgia for years to raise my 3 children without any medication except for allergies. It was when my bones started crumbling, & believe me that is painful, that I had to stop work by doctors orders & go on disability. Then I had to start the course of pain meds. Here I am 23 years later, still have the fibro pain, & still on pain drugs. They just don't help 'me' with the fibro pain. Some of our members swear by other type of drugs like cymbalta, which is an antidepressant, amityrtilline, another antidepresant, lyrica,which is a seizure druh that heped my fibro pain but the side effects were too much, Savella, which is another antidepressant, which also has side effects that are unpleasant such as causing high blood pressure. Gabepentin,which is seizure drug used off label for pain & so on. I would suggest one of these first before getting on the road to opiate pain killers. The DEA in this country is doing all they can to stop doctors from prescribing pain meds unless you have a verifiale condition like my bad back, & bones falling apart, or now it's getting so bad it doesn't matter if you even have cancer they are not writing scripts for these type of pain pills. The DEA has no bussiness in our healthcare, but they think they will end the war on drugs by taking away pain drugs for people that are in chronic pain, & putting doctors that write them in prison. Yes, some needed to go, but not all of them! So I wish you of luck. Below find a link on Nycynta. It's a doctors monograph, but you will get the idea. Wishing you the best...
Hello articdoo, Welcome to the site, and very good question. The great thing about this site, other than the great people and support you will recieve, is there is a variety of views and opinions. I think that's very interesting, however it can be a bit confusing at times too. I have Fibromyalgia. And even though I still will get Flare Ups, and it will bother me, I definately think it is worse without pain medicine. People who take pain medicine for chronic pain... still have some pain, either constantly, or from time to time. Medicine doesn't cure every bit of it, is my point. But it definitely helps. Me anyway. My Dr. tried me on Nucynta 200mg. I'll be honest, it helped my pain tremendously. In some cases, people experience headaches while on it. Unfortunately, I was one of those people. I had terrible headaches every day, and had to stop. Boy I wish I didn't have them headaches, because that was some great medicine for pain, in my case.
But not everyone gets the headaches. If you can take it, and not get the headaches, I think you will be very pleased with it, and definitely think it might help. It did me. I wish you the very best of luck with this. Oh my goodness. I just realized recently how in the world Fibromyalgia can be a very painful beast of a disease. My goodness. I was like a little kid with the flu. I'm telling ya. I had my blankie, and curled up on that couch, and my hubby was wondering what the world was the matter with me. He hugged me and I winced. lol. The look on his face was priceless. lol. He said... do you have a bruise somewhere or what? lol. It was bad. Well..now I can testify what a Fibro Flare is. Good luck to you, and many blessings. Ruthie
- Nucynta Information for Consumers
- Nucynta Information for Healthcare Professionals (includes dosage details)
- Side Effects of Nucynta (detailed)
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