My daughter was just diagnosed 3/21/2013 with chronic pancreatitis, she is only 22 years old and has had it for about 14 years, she has been sick and in pain everyday of her life, first they thought it was food allergies, she is allergic to about everything, when she was 14 they told her it was IBS, when she was 20 she requested her gall bladder be removed which helped for a little while and the doctor told her the symptoms were in her head. Just because she did not have the pain in her back or radiating to her back. My husband saw a commerical on TV last week regarding a girl named Katie who had been sick for 5 years and in pain I don't know remember her story but she had a transplant and she was better. My husband told me that her symptoms sounded a lot like our daughters symptoms my daughter is also named Katie but my daughter has been sick a lot longer. We called UNMC hospital ourselves and he did an ultrasound of her pancreas and took a biopsy and she has chronic pancreatitis. We don't really have the diet thing down yet, she ate a piece of pizza and took 3 creon pills 15 minutes before she ate and thought she would not get sick if she took the pills. Can anyone give us some tips.
My sister had this at 20 from drinking. I would avoid any fatty foods they will make the organ bloated and you actually appear overweight. I've never heard of the pill but my sister would get violently ill after eating high fat foods.
Your daughters story sounds exactly like mine. I had it for years and i was told everything from IBS to constipation. I was diagnosed about the same age. The enzymes only help with malnutrition. They don't help with flare ups. Chronic pancreatitis damagesthe pancrease and you become enzyme deficient. That is why the enzyme supplements come in to play. I found the very few doctors have experience with chronic pancreatitis. Only gasteroentrologists have a very good understanding of the condition. A diet doesn't have any effect on triggering a bout of pancreatitis unless it already in flare up status. There are many things that trigger pancreatitis, Seeing the gasteroenterologist can help determine what triggers it. There are a bunch of test that can rulenout genetics or gall stones, etc... cutting the fat helps with digestive on general, and enzyme amount. I take 4 of the mt20 with each meal. It helps to take one at beginning and spread through out the meal and not all at once.
Has she been checked for Celiac disease?
Hello. I too, have the same disease. You didn't specify the dosage , unless I missed it. Every food marked low fat is not. If it were a slice of pizza that would be considered a snack and would not require 3 pills. Too many pills can cause adverse reactions, too. Cheese pizza has fat which makes the pancreas work harder. Check with your doctor again regarding the instructions..I take 1 with snacks
and 2 with meals. But check with doctor and pharmacist just to make sure ever thing is in sync. Hang in there and continue to be strong. Be blessed.
I’ve only been taking Creon for a month, but my understanding is you take it midway through eating and not before or after food.
Well my doctor said to up the pills I'm taking 5 with meals 3 with snacks
- Creon Information for Consumers
- Creon Information for Healthcare Professionals (includes dosage details)
- Side Effects of Creon (detailed)
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