He was on the trial but before the results were in (it showed 50% improvement), the drug was made FDA approved. Though the trial doctors promised that he would receive the drug from them if it showed effective, they didn't follow through. Now that it is FDA approved, we have to go through Medicaid, and they don't pay for it.
Hello AKRN. I researched your question and can understand your frustration. The cost of this drug on a daily basis is enormous. The best I might suggest is to get a local politician involved. Not knowing if you had anything in writin, but even if you didn't, he was a part of the study and has a paper record of being treated with the Carbaglu. I feel for you for its certainly a sad situation when a company uses a patient, as a part of a clinical trial, then renegs on thier offer. Good health and wishes to you,pledge
- Carbaglu Information for Consumers
- Carbaglu Information for Healthcare Professionals (includes dosage details)
- Side Effects of Carbaglu (detailed)
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 7 Aug 2011 • 1 answer
Posted 9 Apr 2012 • 1 answer
Posted 31 Mar 2014 • 1 answer
Posted 3 Feb 2015 • 2 answers
Posted 28 Aug 2015 • 5 answers