He was on the trial but before the results were in (it showed 50% improvement), the drug was made FDA approved. Though the trial doctors promised that he would receive the drug from them if it showed effective, they didn't follow through. Now that it is FDA approved, we have to go through Medicaid, and they don't pay for it.
Hello AKRN. I researched your question and can understand your frustration. The cost of this drug on a daily basis is enormous. The best I might suggest is to get a local politician involved. Not knowing if you had anything in writin, but even if you didn't, he was a part of the study and has a paper record of being treated with the Carbaglu. I feel for you for its certainly a sad situation when a company uses a patient, as a part of a clinical trial, then renegs on thier offer. Good health and wishes to you,pledge
- Carbaglu Information for Consumers
- Carbaglu Information for Healthcare Professionals (includes dosage details)
- Side Effects of Carbaglu (detailed)
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