Hi there... yes I have been asked to take it forever also. I asked what the stats were for people getting Prophylaxis, he said 6 out of 300 patients had developed the illness even after having had transplant for a long time. Apparently it is unusual for people to ge this late in transplant years, so are giving across the board to all patients. I asked if it was compulsory, and saud no, but I could get very sick if I didnt take the Bactrim. I said I wanted to research more, so here we are. I am really not keen on this drug... On top if the immunosuppressive drugs, it would upset my system a lot. Any info much appreciated.
I was initially told I had to take it forever too after my kidney transplant. Then, 5 years after my transplant, my nephrologist told me I could stop taking it, so you don't have to take it forever. I believe her because I saw the transplant team for a year or two until they referred me to a nephrologist - after a year or two, the transplant team doesn't need to see you if you're doing well with the transplant. You should also check the side affects of Bactrim and kidney problems.
- Bactrim Information for Consumers
- Bactrim Information for Healthcare Professionals (includes dosage details)
- Side Effects of Bactrim (detailed)
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