Diagnosed Feb2012. Currently doing a prednisone tapering at 12.5mgs daily soon to go down to 10mgs daily pending blood work results from 30June. Tried Imuran in Apr2012. Could only tolerate 30days. Severe vomiting/diarrhea stomach problems. Dr wants to start Cellcept when I get down to 7.5mgs of prednisone. I need any info about this disease, medicines, side effects, etc that anyone can give me. Please help me!!! I am very scared. 57yr old female. Thanks so much!!!
I'm 42 and have had autoimmune hepatitis since I was 17. I took prednisone for 8 years. I gained about 50 lbs and Suffered many side affects including thrombocytopenia purpura which resulted in me having to have my spleen removed. I also tried cellcept but didn't like those side affects either. When I was 25 I saw a liver transplant specialist at Cedars Sinai med Ctr who tried giving me cyclosporine. At the time he wasn't sure whether or not it would work. I was so sick that I was heading for a liver transplant. Well, the medicine worked! I took it for 14 years and over the years I was able to take less and less of it. I am now completely off the medicine. The doctors tell me I am in remission. I watch my diet... eat healthy and try to use organic foods when I can.
My advice to you is to get off prednisone, with your doctors help of course. Try the cellcept but if that doesn't work, try cyclosporine. Also eat natural foods, not processed as everything you consume has to go through your liver. drink lots of water. And you can get more information on the united liver foundation website. I even went to a liver transplant support group meeting many years ago which really helped me. I'm still not the picture of perfect health... I need to lose more of the weight I gained while on prednisone, but I'm trying. And the good thing is that i no longer need a liver transplant. Good luck to you.
Mbsunny54, since your post is years old I wondered how you were doing and feeling now? Did you get the information you requested? Do you feel more comfortable in your situation at this time? I too am dealing with AIH and Prednisone. I know how comforting it is to feel you are not alone...
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