I am 20 years old and was diagnosed with dermatomyositis about 6 months ago. My current doctor in Tyler, TX put me on plaquenil and told me that it would work within 3 months. It hasn't. I still have swollen muscles and joints and am in pretty severe pain when it comes to moving my arms and hands. For some reason my doctor won't take me seriously and is more worried about the rash my disease causes rather than my immobility. He keeps telling me "well your rash is gone so the medication is working." I honestly am not vain enough to care about the rash, I'm more concerned about my muscle/joint pain. If anybody knows of a good doctor in Dallas I would be so grateful!!
I just had a muscle biopsy and I've been on plaquenil about 3 years now. I have severe muscle weakness and mostly it's caused by the DM BUT plaquenil has also contributed to the weakness... just a little FYI. I have an appointment with my doctor Tuesday to take me off of plaquenil and see what's next!
Sorry I live in California and have a wonderful Rheumetologist wish I could send her your way!
Sending you strength!
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