I have been on gammagards sub q for six months. I switched from gammunex IV after two years. If you have had similar side effects please share your story and how you deal with the side effects.
I've been on Gammagard subq for 7 months. Prior to that I was on Hizentra subq. I've had side effects with both, but more with Hizentra. I have been gaining weight steadily, and not sure if this is result of Gammagard. When I take my infusion I get hungry. I asked my immunologist whether people report getting hungry, and he laughed and said yes. It isn't a laughing matter to me. I also get upper back pain and fluid retention. I have to take benadryl with the infusion to avoid the skin reaction. I've tried changing the infusion site from abdomen to thigh, and seem to get fewer side effects that way, although it is more uncomfortable. I"m thinking of taking some Zantac or other digestive med before infusion to see if that helps the hunger. I also take tylenol or vicodin for the headache.
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