I have trigeminal neuralgia on both sides of my face and saw the post on gallixa. Has anyone used this with success? I realize everyone is different but I am out of options. Meds do not work and after two brain surgeries no further surgeries can be done.
I have Trigeminal Neuralgia (TN) and Cluster Headaches (CH) I use Gallixa when my face is starting to ache, that tightening feeling. I mainly rub it lightly on the area that I start to feel the pain and also behind my ear on my right side (that's the side of my TN). It helps with those types of pain not the stabbing or ice pick pain. I wish the makers could get funding to really make a product to relieve all of TN's pain. I've been using it now for almost three years. It's also great for any other body aches and pains.
Good Luck, TNnME
I tried Gallixa after the scientist who developed it came to speak at one of our support groups in the SF Bay Area - he's a little ways away in Menlo Park, so it was gracious that he attended and handed out samples. Truthfully, I fully expected it not to work, and felt that postings I'd read elsewhere about it were sham reviews. I'm glad that I tried it though, because it did help - I've had an MVD, and just about every complication that one could have with it. I had a VP shunt put in to deal with the high CSF pressure. I had a PNS implanted, and again explanted, due to complications. So I've been around the surgical block, so to speak.
What I'm left with Classic TN in terms of the sensitivities - the response is slightly delayed but it ramps up quickly until it is dreadfully bad, and constant, like Atypical TN. I too find that when I put it on soon after the pain starts, it does dampen it - not like lidocaine, which numbs everything, but more selective - it leaves the sensory nerves functioning but blocks the pain sensation.
I've heard anecdotally that it has more success with the Atypical type pain. Personally, I use it along with a compounded creme that has lidocaine, ketamine, and gabapentin in it. Between it and the Gallixa, I am able to go outside without feeling the usual sensitivity - that's a really big deal to me! It also helps to keep the pain away till later in the day, and any hour that I can buy without pain is golden. Sometimes it will stop the attack completely, if I put it on soon enough. In addition, my husband and I both use it for nerve pain and arthritis of our cervical spines, and he uses it on his sciatica as well. I would buy it just for that! It really helps. So, all around, it gets used up pretty quickly in our household.
There is a tough 90 year old lady who comes to our groups, she finally got diagnosed with post-herpetic neuralgia after being put in touch with the right kind of medical assistance. She absolutely refuses to take medications, (her family got her onto psychatric meds when they became convinced that her pain was psychosomatic) so for the longest time she refused to try even this, but finally she did, and, my gosh, what a difference - she seems so much happier, and reports more good days - I'm so glad to hear that, she was really struggling with the pain.
So, as with most treatments for this illness, it has become another tool in my toolbox - nothing works 100%, but this works better than many of the other treatments I've had.
I hope this helps answer your question - stay strong, ok?
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