I was diagnosed with fibro almost two years ago now and after confirming that's what was going on the Dr. gave me no direction nor help besides go see a psychiatrist to get something like Cymbalta , Neurontin etc..I can NOT take any of these meds as they make me feel like im drunk, hostile, and like im on another planet, I am full with frustration have no idea what to do or where to go and my family is suffering from me having this and not getting any help to treat the symptoms. I don't know what to do to better my quality of life . ive tried eating better which I do great with drinking lots of water try to exercise as much as possible with the amount of pain im in. im 32 with 5 children and can not imagine how the rest of my life will go on like this. any help info will be greatly appreciated
I am going through exactly the same thing. I have had this condition for 5 years now with intense pain the last 12 months. I have been to every doctor/specialist in my HMO and they all have given up. I was sent to psych as well no triggers or issues there... don't you love when there is no answer they turn to "you must have psych issue"
My blood work is good , arthritis moderate, fibro pain through the roof. I have tried every drug Cymbalta Gabapentin Lyrica Celebrex
Now I am 30 days into Sevella. I take tramadol for pain and it DOES work with very little side effects 50mg x2 a day. The others blew me up like a balloon gave me migraines blurred my vision and took away no pain. Sevella to date is giving me chest pains and leg cramps but I am going to stick it out a bit more because I was told this is it there isn't anything else to try. I figure if I have a heart attack maybe someone will pay attention and listen to my issue!
I do physical therapy and occupational therapy but it's all just stretching which causes more long term pain than it's worth.
Swimming and being in water helps a lot but I can't live in a pool. I also live in a very cold climate and getting to the pool in the cold air is painful.
I have an 8 year old... was working a great paying FT job until 8 months ago when I just couldn't keep up any more.
I have now lost my job.
I don't qualify for disability because my doctors documentation isn't supporting enough?! Whatever that means.
I like you am at a complete loss as to when this will end and what to do next.
I don't drink alcohol ... I eat good foods I am not over weight.
I don't leave the house unless I have to. I don't do anything socially because standing to long or sitting to long both hurt ...
My docs say I am out of their scope of knowledge ... what does that mean!!! Being in an HMO stinks because I can't afford to go to someone that specializes in this condition.
Maybe there are other answers but I can't find them.
I like you joined this post to see if maybe I am missing something as well.
I hope you find some peace five kids with this condition has to be awful!!
Treating fibro takes time and patience. I just had my gabapentin increased again. If you girls aren't giving your bodies time to get used to these drugs, you're going to feel bad and you're going to think they're useless. I started out with only 100 mg of gabapentin 3 times a day until I got used to that. Some drs start you out too high on it and then you do feel rotten. Things like cymbalta take up to 4-6 weeks to start working. If you don't give it the time for that, you'll think it doesn't work and you'll feel bad from it.
Also it takes a cocktail of meds. I take gabapentin, now up to 900 mg a day until I'm used to that then up up to 1800. I still have room to go on that. I also take effexor, because cymbalta was too expensive and norco for pain. I'm not on allot of that tho. I also see a pain dr who injects the trigger points in my back and neck and this makes a world of difference. I have never seen a psychiatrist, they aren't the ones that treat fibro.
Hello Hopefulemm and Lauriecharlie a warm welcome to DC - KM raises good points in her response. It does take time to find a drug regime that works for you and as KM said you should be started on a low dose drug and be increased when and if necessary. Unfortunately some Dr think that ALL people with Fibromyalgia (FM) need to see a psychiatrist or have Cognitive behavioural therapy. This is NOT the case. Whilst some may find some benefit from it (I have yet to come across someone who has), it will do nothing to help you. And if it does help then it is only one small part of a much wider treatment plan. You medication regime should include a drug for your FM. Drugs used to treat FM fall in to 2 categories Antidepressants such as Cymbalta and Anticonvulsants such as Gabapentin (Neurontin) and Lyrica, which seem to be the most commonly used. A muscle relaxant (or more than one. Personally I have 3 different ones) if you suffer from muscle spasms which is common with FM.
A drug to aid sleep as non-restorative sleep will make your FM worse. A common one is Amitriptyline. Pain medication. I think that I am right in saying that in the US they don’t like to prescribe narcotic drugs for FM pain, but they will prescribe one called Ultram (tramodol) which is a manmade narcotic so to speak because this one helps pain and boosts the action of serotonin and norepinephrine (chemicals that communicate information throughout our brain and body that are reduced in people with FM) to help further reduce discomfort. Please note that one cannot take Tramodol and Cymbalta or Sevella. Some benefit from treatment with a dopamine-enhancing drug, such as Mirapex (Pramepixole) for pain. I am on this. Dopamine is a chemical released from the brain to ease the pain. Yet, for unknown reasons this dopamine release does not occur in FM patients. Unfortunately all of the drugs used to treat FM can cause drowsiness but for most people as your body gets used to the drug in question this side effect usually goes away. One should be on a personalised PT regime and one should not push through pain/fatigue as this lowers your already low pain threshold, making your FM worse. Pace yourself throughout the day (easier said than done). You should be under the care of a Rheumatologist who treats FM patients. I would say with this condition you have to be your own advocate. It is widely misunderstood by many GP’s and there are still some Dr’s who still don’t believe that is a ‘Real Condition’. Thus I suggest that you purchase a book on the condition as many website are out of date and combine the symptoms and Chronic Myofascial Pain (CMP) to that of FM and call it FM. Some Dr’s do this also. This should not be done. For this reason I would suggest purchasing a book that covers both conditions as it is not uncommon to have both, I do. CMP is often not diagnosed as many Dr’s/GP’s are not trained to look for it and have never heard of it. A pain Dr can diagnose it this very easily. Once you have read a book on the subject you will be able to tell which websites are the best ones. Like KM said treating FM takes time and patience – Take care
Hello and welcome to DC! KM is wise as always. I have been through a host of meds to deal with fibro. I've tried them all. My Neuronton was just increased to 3300mg per day. It seems to be the only thing that helps me. You must have patience and find the right combination. Good luck with your endeavors.
Welcome to our world of Fibro and Dr's. I'm on Oxycodone 15 mg, Cymbalta 60 mg 2 tabs at bedtime and Gralise ER 600 mg 2 tabs at dinner, after trying many other medications. This combination I take each day for now and pray each day. You can vent on this website and hear others with similar stories. Here you are not alone. We are all looking for relief and medication that works. Welcome to our family. So if you need to talk to to someone you can talk with everyone or private. Mary
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