Hi. I am not on this site often but when I am it is overwhelming with the love and caring. I am so frustrated because I have been seeing this doc since June and do not feel any better from the RA. I am so exhausted all the time, especially after having the grandbaby and I am only 50. My doc first tried Methotrexate and I got horrible headaches so could not take it. In Dec. I started Sulfasalazine 500 once a day and then in Jan. 2 times a day. She reduced my Prednisone to 9 mg from 10 mg per day. And when I visit her she asks how much pain am I in and she never seems to like the answer. It is either, that is a separate issue or you have such a sensitive system we have to go slow. The pain at times is so unbearable and I get so miserable. I guess I need to know I am not alone.
I do not have RA but I feel very bad that you've had no replies. It sounds to me like your Dr is not being sensitive to your pain, whether she "likes" your answers or not. Is your Dr a specialist? With this diagnosis you'll need someone with whom you can have good communication. Maybe it's time to find a new Dr. I just switched from my old Dr to another Dr in the same practice and I'm happy that I did. I never felt I was communicating well with her and she was rather dismissive with what I told her. Sometimes we must take our health care into our own hands. Are you able to see/enjoy your grand baby? I too have my first. She is a joy. Please let us know how you're doing.
Perhaps you should ask for a referral to a pain management specialist. I see both a Rheumatologist and a pain management doc. In my case, I was in Pain Management before I was diagnosed with RA but my PM doc gives me my pain meds and the Rheumatologist gives me meds for the RA. I am taking meloxicam right now. Originally she wanted me to try Plaquenil but I read about it and decided I didnt want to try that just yet. I cant say my pain is under control all the time but it is better.
Most of us have felt as hopeless as you have, trust me. I am only 51 and at 48 couldn't handle one more day. I got lucky though, my PM Dr had been on a sabbatical and had finally come back, he didnt treat me like a criminal searching for drugs, thank God and my Dr., truly. He raised hell until I got help.
Im so sorry the Mx didn't work, I feel I am the poster girl for Plaquenil and Methotrexate combination. Your "cocktail" just needs to be found.
I have also found that female Drs tend to be less passionate. I don't know why, I have theories, but what good are theories when you need help now. There is no need for guilt or recriminations, just find another RAologist. I refuse to see any of the female Drs in my PM clinic, they are scary mean!! AND when the medical assistants agree with you, you know you aren't paranoid!!!
I have been told one of the best in the nation was who I was sent to first... he literally called me a drug seeker and he wouldn't help. He called me a liar!!! By the time I left his office, I was crying so hard, I don't know how I made it home. I was so depressed, I just wanted to die. Frankly, now looking back, if I could bring him up on charges of anything, I would. I think he has a thing for his own press.
Anyway, none of my ramblings will help in the short term, don't give up. If you are the sole care for your grandchild, you may need to make some changes. I have 2 very active grandsons and when they leave or I get home from visiting, I always have to have a nap!!!
When I see posts like yours, I get mad all over again about how patients can be treated. Please don't give up.
Hello retiredelfin. I also know what it is like to deal with pain and prolonged illness. Mine started at 55. Currently dealing with shingles. Sort of an icing on the top. But I keep going and keep looking for something to ease my trials. There are many days I wondered why I kept going. They slowly faded and turned into days of enjoying what I do have.
My sister has been dealing with RA and Osteoarthritis for years. Pain management was the best choice for her. The search for an effective drug continues. Some work for a while. Meditation has helped her tremendously at the Pain Clinic.
Prednisone I know well. Your dose is low. Am happy for you about that. Keep searching for relief. Let me know how the clinic goes for you. It will help. Stay strong. We are here for you. Karen
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