Oh, yea! Totally exhausted! I also get a headache, muscle and joint aches although I take benadryl to counteract side effects. I've been getting IgG, either Gamunex, Vivaglobin or Hizentra, for 9 years. IVIG is worse than the Sub-Q by far. I was sick the week before the infusion and the week after with Gamunex. Now with Hizentra, I just feel rotten the day of the infusion. I guess we can't get away from that --- it's the nature of the beast, yet a small price to pay considering the alternative. Best wishes for good health!
I had a series of IVIG (nurses would often call it IGG) the methyl prednisolone and Benadryl would wipe me out for a couple days. As I have a muscle disease, it hurt. I hear you. All I could do is plan on three days with nothing going on but rest. Then it was magically done until the next one.
Yes, definitely and the fatigue never improved. I was switched over to Gammagard . You might want to speak with your Dr about switching over. The concentrate is 10 % rather then Hizentra which is 20%. I have improved greatly from the pure exhaustion by switching. A side note, my Dr asked a rep. of Hizentra what can be done for the extreme fatigue and they told him nothing can be done. Then put on Gammagard.
- Hizentra Information for Consumers
- Hizentra Information for Healthcare Professionals (includes dosage details)
- Side Effects of Hizentra (detailed)
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