I am experiencing a burning mouth (including gums and tongue). Also experiencing burning sensation on face and lips. To the point it is very painful. Not sure if it is the Prialt or not. Anyone else experience these symptoms?
i´m not using prialt...
but I do have a chronic severe pain of tongue lips and face... cheeks, the skin between the nose and lips it burns me... I can barely eat and due to the pain I stopped talking almost two years ago. I really can´t speak nothing 2 years ago, they did me a biopsy and found " mild inflammatory infiltrate with lymphoplamacytic predominantly lymphocyte and collagen fibre. Eosinophil amorphous material. Muscle fibers are present and are atrophic" (I copy paste what my doctor wrote jaja)
Im from peru but a week ago i went to philadelphia to see a specialist... I was hopping a magic cure. I had a great time en phili... but in the medicine area it wasnt what I expected but i have a background of an autoinmune disease so they want to treat that first.
Anyway i´m so sorry that my answer is not at all an answer full of hope but in some way is good to know you are not alone with this pain and perhaps something can be done. my husband is doctor and he found a doctor from sao paulo that has a clinic study. he has improve a lot of BMS with a laser operation. It doesnt work for me due to mi autoinmune problem, but maybe it can help you. let me know if you want his mail or some tips.
I hope your pain never goes to mi level and i hope the best for you.
sorry for mi rustic english! i write like a horse.
my husband told me that if you need or have any question or doubt you can and should (if you want) write to him or me. He loves research, he reads everyday since years ago and have found doctors, specialists and eminences about this topics.
I mean ... i know this is so random, he still can't help me but in the way of finding things for me he has known a lot of impressive doctors and a lot of articles and he will be more than happy to help you, maybe something that didn't work for me could work for you.
I'm not a crazy optimist... all the opposite but my husband is a crazy optimist and he loves to help.
My husband is a very nice person and he loves to help. He is from France he speaks English, Spanish and French. All of the doctors that he has reach and know are from Paris, Strasbourg and Madrid and korea! so he will be more than happy that write you letters or give you some tips or whatever. He also has read a lot about PRIALT, which I can´t use because I have polimiositis.
Anyway the same for everybody with doubts about BMS don´t hesitate to write to us. WE ARE NOT AT ALL EXPERTS... it could be that we are more lost than all of you out there but I really hope that all of our research really helps another one to live a better and beautiful life.
francesca and baptiste.
- Prialt Information for Consumers
- Prialt Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prialt (detailed)
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