I am a 46 years old male. I had a major episode involving both knees. On the fateful night (in October 2011), I went to bed feeling slightly sluggish - I had been having back problem for several months. When I woke up next morning my knees were very stiff and I couldn't get up. My orthopedic (who has been treating me for back ache) referred me to rheumatologist leading to diagnosis of Ankylosing Spondylitis. I was treated using regular NSAIDs and pain killers to no effect and my general health also took a sever beating. In January 2012, I started taking Humira (40mg every other week). It had dramatic effect on me. Since March 2012, I have no pain in knees or back and taking no drug other than Humira. Doctors say it is to be taken every other week lifelong. I would like to phase it out gradually and finally take it as SOS. Does anybody has experience or comments?
I don't think your RD will take you off of the Humira as long as it is working for you unless you stop showing signs of inflammation. Do you have any fusion yet? Because there's no cure for AS, the goal is to prevent you from fusing, and to keep your immune system from damaging your heart, lungs, kidneys, etc. Does it bother you to take it, make you extra sick, or are you just tired of fooling with it? Have you asked your RD about it? I suspect he would have the best answer for you. If you're taking it and are able to live a 'normal' life, I would thank the Lord, take your shot and move on:)
Hi. It has been my experience that if a drug works for you stay on it. It is also my understanding that AS rarely goes into remission and stays that way without the drug therapy. I know that if I am late getting the drug, or get sick and have to stop taking it for a while it takes several weeks to a couple of months before the symptoms-stiffness, pain etc--- are back under control. I would advise you not to go off of the humira without talking if over with your healthcare provider and getting his/her support first. Being pain and symptom free means the drug(s) are working. I am sure you will make the right decision for you, and remember you can always change your mind later if you find that something isn't working for you. Take care and be well! Lady of Howard
- Humira Information for Consumers
- Humira Information for Healthcare Professionals (includes dosage details)
- Side Effects of Humira (detailed)
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